I Don't Know Who This Person (me) Is.I started seeking help about 5 or six years ago. I was diagnosed everything from irritable bowl syndrom to a simple you're crazy there is nothing wrong with you. i gave up for about 2 years and then Jan 3, 2011 i noticed foot droop - that was new and the unrelentless fatigue. My family didn't understand, my job didn't understand. I didn't understand. I switched drs and for the first time felt a ray of hope. I was eventually diagnosed on May 28th 2011, and from here it's been HELL!
I am about to losse my job of 8 years, my husband offers no support and is a great source of stress for me. I have 2 older boys who are only around when they need something, and then there's the 9 year old daughter, who just doesn't understand what has happened to her mom.
I am so sad and lonley. I just feel like giving up. I wish I had never found out what was wrong with me. I tried Avonex but that landed me in a mental hospital ( really shouldn't take that if you already suffer depression) Now I am taking Gilenya and I'm not sure if it's helping or not.
I live in constant, unrelenting pain. The only time I am not in pain is if i take a series of pills to make me sleep. Often I just hope I don't wake up.
When I try to inject humor people seem to think that I'm all better. I am so tired of explaining why (i look so good today, or you don't look sick, and the best one is THAT HAPPENS TO ME TOO! I haven't found a support group in Indianapolis for Ms but I would really like to talke to people that really do understand. I'm holding on by a thread of hope.
Good day all