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A Journey of 30 Years, With MS As a Teacher...
Mar 9th, 2007
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H
ello All,
I've been journeying with MS as a constant companion for over 30 years, and facilitate a wellness & support group in CO. I'm also a retired clinical and transpersonal hypnotherapist. Like you, through many ups and downs, I've learned a lot about myself.
What fabulous, adaptable, creative human beings we are!!
Clearly, life with MS is not easy...and I have no illusions about it; but it is only PART of my experience. I've learned that: who I am/we are is much bigger than MS; we are definitely not "wimps;" and, perhaps we are the keepers of some wisdom about differently-abled bodies, that most people will have to learn for themselves, at some point, as they age.
A lot of my outlook is based in having a daily spiritual practice, which helps me transcend the "rough spots.;" and the fact that I've had some OBE-type experiences. I've had to fight through many misperceptions about who we are with MS, and have been vocal about the body-mind-Spirit approach, and insisting that organizations steer clear of referring to us as 'victims.' In the 90's, I played a large role in introducing the word 'wellness' as a one to be used in the same sentence as MS, believing that we have the right to define ourselves.
All in all, my journey has allowed me to create my own version of a well-lived life, despite the 'evidence of the senses.' I send love and blessings to anyone reading this, who has been journeying with MS!
What about you.....
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  | Posted Jan 31st, 2008 at 3:57PM i have lupus it has been 14 years ,and hard hard to live with eventhought i don t look sick , but i wish to die sometimes not only that my niece was diagnost with ms 5 month ago do you think it s run in the family ?   |
 | Posted Aug 1st, 2008 at 4:32PM Just want to say thank you and keep the faith! |
 | Posted Sep 3rd, 2008 at 7:56PM Thanks for your comment. You're right, it is a mind/body/spirit connection to stay ahead of this disease, or any disease for that matter. There are days when it's hard to stay positive. I'm glad this group is here!! Stay strong!! |
 Feeling peaceful | Posted Oct 29th, 2009 at 11:40PM I agree that a positive attitude is needed with all of life's challenges. I have had MS for 30 years also. |
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