Mri Shows Inflammatory Demylanating Disease ?help?

In May my GP sent me to a neurologist due to MS symptoms. This neurologist refused to even entertain the thought that this is what it could be. He immediately dx me with depression and fibromyalgia.
Finally 2 weeks ago he ordered a MRI due to trigeminal neuralgia. The MRI showed inflammatory demylanating disease in the parietal and occipital lobes on the right side. The neurologist refused to even call me back and I had to get the report myself.
I am going through what my GP believes to be a FLARE? right now.
I just need to know if this is for sure Ms and no one will tell me. Every symptom I have looked at online and my GP has asked about I have, except for the sexual dysfunction.
I am currently looking for a new neurologist. I am only asking for peace of mind. I have been so worried for months and even if the answer is yes to MS will give me this.
I appreciate your time and any help you can offer.
dbutton dbutton
26-30
2 Responses Dec 4, 2012

Hi there,
The positive MRI and the symptoms certainly raise the suspicion of MS. But you will need to have some other other tests as well (like a spinal tap and cranial nerve conduction testing). The drugs used for MS have quite a few side effects and are quite expensive (like $ 50,000 a year) so you want to be quite sure it is MS before you start treatment..
I don't really understand why your neurologist is not taking this serious. I think it is a good idea to see someone else. But ask your GP for a recommendation; you are going to need him/ her a lot in the near future.

Since you already have an MRI please find a MS Clinic. Even if you have to travel. You may still need a lumbar puncture and blood work...but they will get to the bottom of it. A neurologist is not necessarily an expert in MS. Good luck and stay strong. It is scary, but please do not fear the worst. Fear is far worse than the actual disease.