Print this story Print

Size

Shock

A personal story in the experience: I Have Multiple Sclerosis
S o I was diagnosed with MS almost eight years ago. My first feeling upon being diagnosed was shock. Then came fear, then depression, and finally I came to know my MS. I then decided to fight the disease tooth and nail.

I'm currently taking a medication called Beta-Seron. It's a subcutaneous injection I have to take every other day. I consider myself a "lucky" victim of MS. I've read stories, and heard tales of pain, and torment other people have dealt with from their MS. I have no pain, I feel no torment. I've come to accept my MS as part of my life. It's just something else I have to live with every day.

There is no cure for MS, only therapy. Medication to help you through each day. That does include anxiety and depression medication. Those come in very handy from time to time. MS is an immune system deficiency disease. Along with prescribed medications for the MS, I take a regimen of supplements to help support my immune system.

I have a five year old daughter who is in kindergarten. She's around other sick children every day. If she comes home with a little cold, it will be passed on to me. Needless to say I spend a lot of time and money keeping my immune system well enough to help keep bacteria and germs which might pass on a cold/flu/infectious bug out of my system.

The easiest way for me to live with MS is to accept it and live every day to its fullest. Everyone has different ways of coping, that's the one that works for me. After being diagnosed with MS I've spent hours researching the disease. I have a wealth of knowledge pertaining to it. If anyone has any questions, feel free to ask. I'm an open book.

Loki-"Trust No One"
Comment (6) Share Your Story Flag
Share |

Comments
   1-6 of 6 Comments   
Comment on this Story
Posted Nov 13th, 2007 at 10:15AM
How important is an "official" diagnosis? I mean, if I'm functional and there isn't really a cure or anything, is it important that a Dr. tell me what I've already guessed? I had Optic Neuritis earlier this year and that was the first thing that ever made me even consider that I might have MS. But since then, doing research, taking tests, assessing my life, I've realized that there have been a lot of signs over the last two years. Falling, stuttering, running into things, mood swings, pain, numbness, tingling, etc.
I don't have health insurance and won't have for possibly as long as six more months. So the bills from the ON are already killing me, and I can't even imagine how much going through the process with a GP is going to cost. If I'm diagnosed now and then sign up for a new insurance program it will be a pre-existing condition that will take a lot of fighting to get coverage for.
So I guess my question is, if I'm doing all the things that I can find to improve my health, decrease my risks, and care for the symptoms, is it really important that I be officially diagnosed right now?
     
Posted Jan 1st, 2008 at 7:26PM
I was diagnosed just a few days ago and I'm trying to decide which medication treatment to start. The doctor says I'm at the RRMS "stage" - I have a great attitude about the diagnosis, just going to live my life while I manage the disease at the same time. I noticed you are taking Betaseron, why did you decide on that one and do you like it? Thank you!
     
Posted Jan 5th, 2008 at 4:11PM
I know very little about MS but I find strength in your positive attitude. One thing that I do know is that my old landlord that lived upstairs from my wife and I had the disease and she was bound to a wheelchair due to the deterioration of her muscles. She ended up searching for solutions using some ancient alternative medicine practices. She is now walking and building muscle again due to accupuncture. She swears by it and says that it has given her, her life back. Just wanted to share the little that I know about something that helped someone I know. Best of luck to you. Keep the positive attitude!
     
Posted Oct 7th, 2008 at 10:09PM
i felt your story related to me in so many diifferent ways. i was dignosed 4 years go with m.s. and at first was indenial about the whole disease. i try to stay positive about the whole situation but it's sometimes hard. i also have a five year old daughter who just started kinder this past Aug and right know i'm sick becaused she gave it to me lol. but what i'm rally concerned about is my relationship with my guy we've been together for almost six months already and i haven't told him, im kind of scared on how he would reacted. can you give me your oppion on my situation iand what do you suggest on me doing telling him or not??
     
Posted Mar 4th, 2009 at 10:59PM
Type your comment here...
     
Posted Jul 13th, 2009 at 10:56AM
WOW!! I am so glad I signed in today!! I too have MS and I was diagnosed in March of 1987. To be honest I ignored it for the first ten years aftetr my diaagnosis. At the time , my doctors really did not know much about it and were not very helpful. I researched it as much as possible, but my case was so not like any others i read about. Long story short, I started Beta Seron about 2 years ago and I tolerate it well, with minmal side effects. Prior to that I had been on Copaxone which I think was eventually going to kill me. The side effects were unbearable for me.
     
   1-6 of 6 Comments   

Share Your Comment
...then continue the discussion in the story's forum or, send this story to a friend

Experience Project is a community based on authenticity, support, and respect. EP encourages you to post with these values in mind.
Comments
My Comments:
  Notify me by email when there are new comments
 

Polls for I Have Multiple Sclerosis

Questions & Answers for I Have Multiple Sclerosis

Here are a few Questions and Answers for I Have Multiple Sclerosis

Have Multiple Sclerosis Open Questions
There are no open questions yet. Why not ask a question now?
Have Multiple Sclerosis Resolved Questions
There are no resolved questions yet. Why not answer a question now?

See all question and answers for I Have Multiple Sclerosis


Forum & Chat Board for I Have Multiple Sclerosis

Here are popular forum topics for I Have Multiple Sclerosis

See the Have Multiple Sclerosis forum to chat about these topics and more!


Music, Song, Artist, Book and Movie Recommendations
music
Music:
Song Recommendations
That I Would Be Good by Alanis Morrisett
You'll Never Walk Alone by ?
I Will Survive by Cake
Add your own favorite songs and lyrics for I Have Multiple Sclerosis
video
Video:
Movie Recommendations
No Recommendations Yet
Add your Video recommendation
book
Book:
Book Recommendations
No Recommendations Yet
Add your Book recommendation

Related Topics to this Story

Show this Story's Author Some Love

There's lots of ways to show you appreciated this person's story from the experience group, I Have Multiple Sclerosis. Send them a virtual gift, make a gesture, scribble on their whiteboard, or send them a private message.

Translate this Story

Anonymous & Free
to join millions in the world's largest community of life experiences
Explore first-person stories about any experience, including your own! Connect anonymously with people who understand.
↓ ADVERTISEMENT ↓
Be YOURSELF

Be a part of the biggest social experience on the web. Where who you are is more important than who you know. Share what matters the most and find others who just "get it."

Join now and get started in seconds, or learn more about Experience Project

↓ ADVERTISEMENT ↓
Fun Personality Quizzes

Answer a few questions and find something out about yourself!

Of course, we love to hear Your Story, whatever it happens to be. You can be yourself here!

Questions For You
People Like You
This entry is from the Experience Group:

"I Have Multiple Sclerosis"

↓ ADVERTISEMENT ↓