I'm currently taking a medication called Beta-Seron. It's a subcutaneous injection I have to take every other day. I consider myself a "lucky" victim of MS. I've read stories, and heard tales of pain, and torment other people have dealt with from their MS. I have no pain, I feel no torment. I've come to accept my MS as part of my life. It's just something else I have to live with every day.
There is no cure for MS, only therapy. Medication to help you through each day. That does include anxiety and depression medication. Those come in very handy from time to time. MS is an immune system deficiency disease. Along with prescribed medications for the MS, I take a regimen of supplements to help support my immune system.
I have a five year old daughter who is in kindergarten. She's around other sick children every day. If she comes home with a little cold, it will be passed on to me. Needless to say I spend a lot of time and money keeping my immune system well enough to help keep bacteria and germs which might pass on a cold/flu/infectious bug out of my system.
The easiest way for me to live with MS is to accept it and live every day to its fullest. Everyone has different ways of coping, that's the one that works for me. After being diagnosed with MS I've spent hours researching the disease. I have a wealth of knowledge pertaining to it. If anyone has any questions, feel free to ask. I'm an open book.
Loki-"Trust No One"
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Posted Nov 13th, 2007 at 10:15AM How important is an "official" diagnosis? I mean, if I'm functional and there isn't really a cure or anything, is it important that a Dr. tell me what I've already guessed? I had Optic Neuritis earlier this year and that was the first thing that ever made me even consider that I might have MS. But since then, doing research, taking tests, assessing my life, I've realized that there have been a lot of signs over the last two years. Falling, stuttering, running into things, mood swings, pain, numbness, tingling, etc. I don't have health insurance and won't have for possibly as long as six more months. So the bills from the ON are already killing me, and I can't even imagine how much going through the process with a GP is going to cost. If I'm diagnosed now and then sign up for a new insurance program it will be a pre-existing condition that will take a lot of fighting to get coverage for. So I guess my question is, if I'm doing all the things that I can find to improve my health, decrease my risks, and care for the symptoms, is it really important that I be officially diagnosed right now? | |
Posted Jan 1st, 2008 at 7:26PM I was diagnosed just a few days ago and I'm trying to decide which medication treatment to start. The doctor says I'm at the RRMS "stage" - I have a great attitude about the diagnosis, just going to live my life while I manage the disease at the same time. I noticed you are taking Betaseron, why did you decide on that one and do you like it? Thank you! | |
Posted Jan 5th, 2008 at 4:11PM I know very little about MS but I find strength in your positive attitude. One thing that I do know is that my old landlord that lived upstairs from my wife and I had the disease and she was bound to a wheelchair due to the deterioration of her muscles. She ended up searching for solutions using some ancient alternative medicine practices. She is now walking and building muscle again due to accupuncture. She swears by it and says that it has given her, her life back. Just wanted to share the little that I know about something that helped someone I know. Best of luck to you. Keep the positive attitude! | |
Posted Oct 7th, 2008 at 10:09PM i felt your story related to me in so many diifferent ways. i was dignosed 4 years go with m.s. and at first was indenial about the whole disease. i try to stay positive about the whole situation but it's sometimes hard. i also have a five year old daughter who just started kinder this past Aug and right know i'm sick becaused she gave it to me lol. but what i'm rally concerned about is my relationship with my guy we've been together for almost six months already and i haven't told him, im kind of scared on how he would reacted. can you give me your oppion on my situation iand what do you suggest on me doing telling him or not?? | |
Posted Jul 13th, 2009 at 10:56AM WOW!! I am so glad I signed in today!! I too have MS and I was diagnosed in March of 1987. To be honest I ignored it for the first ten years aftetr my diaagnosis. At the time , my doctors really did not know much about it and were not very helpful. I researched it as much as possible, but my case was so not like any others i read about. Long story short, I started Beta Seron about 2 years ago and I tolerate it well, with minmal side effects. Prior to that I had been on Copaxone which I think was eventually going to kill me. The side effects were unbearable for me. | |
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