Heavy...

 Thats one way to describe it. My limbs especially my lower extremities feel heavy, as if they are being tied down by weights. The worst part of dealing with this disease is how unpredictable it can be. Sometimes I have more then enough energy for the day and other times I'm drained by noon, I wish it would be more consistent so I know what to expect from day to day.

I never complain about it really, out loud anyway, because I feel no pain, just numbness yet I still have full sensation. Also, some parts of my body got that numbing feeling while other parts are extra sensitive. I do enjoy the fact that my taste buds craves new tastes but I'm not sure if MS has anything to do with that.

I wish I had some good advice for fellow MS patients along with the recently diagnosed but I have none, except keep a good sense of humor, you're gonna need it when you cant pick yourself up from the floor.

 

Nunyabuziness Nunyabuziness
31-35, M
26 Responses Mar 12, 2010

Hi do u want to chat?

For a strong man like you its never too late for you to rise
Wipe that chair off your feet
And wipe all tears off your life
You have a strong personality
You are doing good
You know it just made you stronger harder n deeper
And being able to deal with fear

That "what does feeling but nother feeling, feel like?" Question ...I've learned to answer by having the person asking put their hand (palm against palm) on mine fingers against fingers. Then have them take their other fingers on their other hand(index and thumb) and rub up and down on both my and their index fingers that are being held against each other. Gives them a bit of an idea. You express yourself very well. And yes, humor helps. Thanks for sharing.

I couldn't have said it any better. I too wish I could know what to expect each day. Hang in there and one day there will be a cure.

Check ot CANDIDA FUNGUS OVERGROWTH. This fungus in in everyone. When it gets out of hand, it can be trouble. [MS] I know this.

I wipe my butt with candida everyday

I've recently been diagnosed with ms as well i have heavyness on my left side I was scared ay first because I didn't know what was wrong with me, but now I'm in and out of being happy that I'm living and know what i have to being depressed. I'm 45 days in my second relapse and I'm totally improveing but still so heavy that i look handicapped. I'm a hair stylist but of course I can't do hair, like o said I'm very grateful for breath in my body but in so many ways I'm miserable. I can't do the very thing I shine in don't know what to do for money, haven't worked since Feb. 10 just needed to vent... Need friends that understanding... Ms. Feva

RRMS is a challenge that requires to be effectively managed. By effective I mean managed with good friends, healthy diet, active resistance exercise programs and .... but this is the most important of all positive thinking. I too have RRMS. I have had it for 22 years. I was a young 16 year old when I had my first attack. Thanks to the support of family not telling me what I had, I learnt to live with the symptoms and finish year 12 then finish tertiary education. Had I known exactly what I had at 16 it would have crushed all my dreams and future aspirations. After completing my studies I was informed I had MS. This did not freak me out as I lived a "normal" life with MS for 5 years before being informed. With this positive posture I met an amazing woman whom I married and have had a child with and are expecting another one shortly. Life is short. We must try to live it in the most embracing and engaging fashion. <br />
I understand no 2 MS disease processes are the same and with that knowledge I empathise immensely with the population that have the disease expressed in a more severe manner.<br />
God bless

:hugs: Let's hang in there.

I too have MS, and know how you feel. *hugs*

Even if, I dont need it. I'm tuffz and stuffz.

**** off, SS. =)

Yes, picking yourself up off the floor counts. ;) I am a nurse and I have a few friends in Canada who are younger like you and have MS. Its hard for them as most of the services are for an older population.

After 15 years with MS, I still think I am unstoppable and I can take on the world. My heavy, numb limbs and feet, poor balance, as well as my bladder and fatigue put me in check.

aman Vertigo15!

My arm felt so heavy last night I didn't think I could lift it. I am so tired all of the time. Hard to keep all that to yourself.

You just wrote exactly how I feel! Don't you find it hard to describe to 'normal' people so they understand? Others don't know how to act or what to say and that just pushes my buttons something fierce! First of all, when I am feeling like this, i really don't want to 'chat' about the condition with everyone and I don't want to feel like it's my responsibility to educate everyone. Are you as irritable as I feel right now????<br />
<br />
I hope you feel better soon. Take care of yourself.

for ***** sake...........

lol learn how to spell "ounce" and stop being a moaning ***** for ****.

you deserve every once of pain you get in your life. suck it up and stop being a moaning ***** for attention.

lulz And ******* dead bodies is much better.

Hey, do you have silver fillings? Mine caused 70 symptoms of MS: from ataxia, numbness of my toes, "a burning brain," loss of peripheral vision, depression/anxiety/mania, memory loss, chronic fatigue, and a host of other symptoms. <br />
<br />
This is because silver fillings are 50-70% mercury, which is released into the body as ethylmercury vapor. Anywhere from 3-29 micrograms of mercury are released by these fillings every day. The symptoms of MS and mercury poisoning are effectively the same. I got them removed and most of my symptoms are gone, I just have to spend a few years getting rid of the residual mercury from my tissues. Believe me or not, I honestly don't care. It's not going to be the case for everyone. I just know it worked for me. <br />
<br />
Also if you've been exposed to a lot of thimerosal from vaccines, this could have triggered it. Also the government is now admitting that Hepatitis B vaccines can trigger demyelinating diseases. Check out the FDA's website if you want to confirm there is mercury in vaccines. No level is safe, considering it's more toxic than lead and arsenic. It is the most toxic non-radioactive substance known to man. I have nothing to gain telling people this, only the hope that someone can recover the way I did. It's my hope.

I wish I could workout the way I used to....picking myself up from the floor counts, right?

that guy made a big point,your sense of humor counts big time dealing with this stuff,sometimes if you can find a laugh when its not going so good,it really helps you through.For me,a hard physical workout makes me feel and function better.I just joined a gym,funny right?I have a fraction of the stregnth I had 2 years ago,but I feel I need to push it,an hour or more a day working all muscle groups,even with light weights if thats all you can do,makes a difference.

I don't know what to say...but I won't say that I feel sorry for you...as I'm sure you don't want to hear pity or such. Just a hug.

THANK YOU for sharing! A sense of humor is one thing that I do have! TAKE CARE!!!

All you can do is take it day by day. Some are useless, some are not. At least your sense of humor is good, u need that! It's a constant battle, that no one can see, understand, or feel. I live with alot of pain, but have found meds that help and manage! Manage! A very good definition of MS. Good luck my friend, if u ever need anything? Let me know!

TY love. It takes will power and a good woman behind you.