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I Have Muscular Dystrophy

Not Personally... Yet.

By: flyawayhome
Written on June 12th, 2009

Muscular Dystrophy runs deep in my family, on my dad's side. The women are mostly affected with the type of MD that runs in the family.. not sure exactly which one it is. My Grandma died in her mid to late 50s and my aunt died in her late 30s. They weren't diagnosed 'til later in their lives.

Before I was born, my parents did an amniocentesis of my likelihood to be diagnosed with MD by the time I'm in my 30s.. and it was 50%. Same goes with my sister.

So pretty much, there's a huge chance that this could going to happen to me and my sister. Scares the crap out of me.

How do those of you who are personally affected by this disease deal with it?

I've seen the ugliness of the disease and it saddens me.

By: flyawayhome
Age: 22-25 , Female
640 people have read this story

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2 responses
  • jaideholly
    jaideholly

    i was diagnosed with md in 2008 , i chose not to tell my friends, it was a big mistake, make sure if you are diagnosed with it to tell everyone how and when you need help. things for me havn't changed much in the last year but its getting easier even though my md is getting worse. just remember its easier to cope with friends and familys support.

    Aug 10, 2009
    1 like
    • flyawayhome
      flyawayhome

      How are you doing three years later?

      Sep 27, 2012
      1 like