My Rare Case Of MyastheniaI am a 21 year old female who was diagnosed with myasthenia about a year ago. It first started with shortness of breath and lead to muscle weakness and throat weakness. I am seronegative, and negative for EMG. The only thing my neuro has diagnosed me with is the fact that when he shocks my phrenic nerve, there is an increase in fatigue. Oh and my thymus is enlarged.
I dont respond to Mestinon, IVIG, Plasmapharesis. The only thing I have responded to is prednisone. I got a thymectomy 5 days ago and hoping this will help. Does anyone else have a similar story? Mine is very rare and difficult to diagnose so I was wondering if there is anyone out there that is similar