Two Supplements That Seem To Have Stopped My Myoclonus!!!!

After two years of myoclonus on my left side, I have found two supplements that seem to have completely stopped my myoclonus!!!

After reading a book about 100 ways to prevent Alzheimer's, I decided to go down to GNC for the first time. The supplements were ones that I've come across before when reading about MS, Parkinson's, ALS, Chorea, etc. I am taking Triple Lecithin 1200 which has 1200mg high choline lecithin and 420mg phosphatidyl choline and I am also taking a combined Acetyl-L-Carnitine 500mg and alpha-Lipoic Acid 200mg.

After 2 days, I have not experienced any more myoclonus for almost two weeks now. I have never gone more than about a week without the myoclonus showing back up!!! Only time will tell, but these two supplements seem to be working better than anything that I've done over the last two years. Nothing else has worked.

If you decide to try them, please make sure that you don't have any liver, kidney or diabetes issues. Also make sure that any meds you're on won't have adverse reactions, etc. I am only taking propranolol 60mg and 50,000iu vitamin D, so there's not too much for me to worry about.
greg99999 greg99999
41-45, M
3 Responses Dec 15, 2012

No idea if these supplements have helped. I'm still taking them, but the myoclonus isn't gone and I still have a lot of fasciculations. My tremors are still around also, but some less so. The propranolol might be what has helped some of the tremors. Hard to know

Please keep me updated. My myoclonus started 2 hours after having a CT scan of my sinuses. It's been 2 years since and I'm sick of the 2mg Clonopin and 1.25mg Xanax used to control it.

Will do. The supplements don't seem to be a cure-all, but I think they are helping in general. Only side effect seems to acne on my back since taking them.

When you had the CT scan, was it with or without contrast?

Thanks for you prompt response. No contrast. I've had 12 major events requiring trips to the ER. It looks like my entire body is having a seizure but I'm not. It get's so bad I can't speak. The 72 hr EEG showed they are not seizures. 4mg of Atavin and they stop and they send me on my way. My neurologist is stumped as to what is causing them. Going to an endocrinologist next week for more tests. Hormones can play a role in all of this from all the research I've done. Thanks for listening. Greg

It's amazing how many different things can cause myoclonus and how much doctors still don't know about our bodies. Good luck with the endocrinologist. We almost sent me to one, but went down the neurology road first. So far, every test that my wife, my primary care and the neuro have ordered have all been negative for the most part. I had a positive ANA once and then the next time we checked it, it was normal.

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About a month later and I've also noticed that I have a lot less fasciculations (muscle twitches) and less tremors in my fingers. Aerobic exercise seems to lead to a myoclonic jerk later in the day, but other than that, I seem to be improving with the supplements. I'm starting to wonder if a carnitine deficiency might have had a lot to do with what I've been going through over the last couple of years. This all started when I decided to try going on a vegan diet. We get carnitine from meats and dairy. I was also trying to keep my carbs down.

The supplements seem to help on a day-to-day basis, but if I get real cold or am in a loud theater, I'm still having a lot of trouble.