i started with problems in 1998 at the age of 19 I am now 31 from England. I started with flu like symptoms and then wham I started one night just to shake all over i was fine after for one day and then i started every night for 10 nights jumping. My legs would jump into the air and my back would arch and my teeth would clench, this was in bed for 1 to 2 hours at a time the rest of the time i was twitching. This went on and the GP because when they came out could not see anything as I only did this at night thought i was making it up and did nothing. I got sent to see a man at the hospital who was not sure if I had ecoli or a kidney infection so put me on tablets for a water infection and did some bloods. Until I started during the day as well and then one day the jumping would not stop and the Gp came out and rushed me into hospital at this time I think it had reached its peeck and the jumping stopped. The doctors at the hospital sent me home despite the fact that I was twitchy, I could not stand noise, my back and everywhere hurt including my neck and I was so cold and shivery. I was left with muscle spasms all over my body the muscle contracts it then calmed to mainly my legs. I cant walk far with out using a wheelchair and If I do too much my spasms start off. I still dont like alot of noise and I still twitch now and again, my nerves are shot, I get very shivery if I do too much. and my legs can hurt. Stress effects me and so does heat. Travelling to hospital appointment is a must but I am bad afterwards just travelling there and back and sitting for the appointment. I cant stand too long either. I had to find my own neurologist who put me on Tizanadine and dantrium tablets which have eased the spasms but I stiil cant do alot. I am unable to even work. this neurologist could not tell me what was wrong with me he said he would treat the problem as there was not name. Now 12 years later I am seeing a new neurologist who listened to me and said straight away that I have Myoclonus. and it was probably caused by a virus. the thing that we have not yet discussed is that I had Leukaemia when I was 2 and due to what is called late effects can appear years later from the treatment we dont know if this is the cause of the myoclonus. Anyway he is running tests and when I see him next I will discuss it with him. But It is so frustrating when you dont know what is wrong. I even got sent to see a shrink. Why do these things happen and why did the first neurologist not know? Is there any cure for this as my life is passing me by and I dont know what to do.