Living With Narcolepsy And Cataplexy

Hi I'm 27 years old and had the last year from hell. Since the age of 11 I have been famous for being able to sleep standing up, after several tests doctors couldn't find anything wrong and in time I got used to being tired. I met my partner in 2001 and we had two children together. He has always put up with me falling asleep everywhere but then the cataplexy started. In sept 2012 I went to the drs after the tiredness stepped up a level, I fell asleep driving. I was referred to see a neurologist after a provisional diagnosis of narcolepsy/cataplexy. I have been unable to work or drive since sept and in that time the cataplexy has become unbearable. Laughing results in me ending up lying on the floor as my legs buckle, I'm unable to hold my new baby neice as the slightest over emotion makes my arms/ wrists and head go followed by my legs and I would never forgive myself for dropping her. I also have experienced suffocating, if I'm sat down and I laugh the cataplexy causes all facial muscles to paralyse and my head drops making it impossible to breathe. The longest it's happened is about 20 seconds. I'm aware what's going on all the way through but to anyone watching it looks like iv passed out. I'm trapped in a world at the moment where I'm scared to get emotional as I can't control it and it happens anywhere. The sleeping has backed off slightly but then I'm stuck at home doing nothing so I have all the time in the world to sleep.

Im hoping to get the results of my Multiple Sleep Latency test and MRI soon and start of medication. Can't wait to have a life again.
An Ep User An EP User
Jan 18, 2013