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I Have Narcolepsy

I'm A 15 Year Old Girl

By: Thisisme73
Written on April 10th, 2012
Age: 16-17
505 people have read this story

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2 responses
  • jillybeene

    I am a 16-year old in HS also. i was diagnosed about 6 months ago and it was the best and worst thing that ever happened to me. While the symptoms had only started a year and a half before and we're gradual they did become very apparent and had an effect on my grades. My doctor sent a letter to the school about my situation and i got a 504 plan. Which states that i have permission to have extra time on tests, quizzes, and projects (and of course a nap time). At first they wouldn't let me fix my grades from the 1st quarter but after some persuasion from my mother and an employee corroborating her statements they let me make up some of the work and said that it would not count as much in my final grade for the year. While narcolepsy does not have a direct affect on mental function, sleep does. With out rest you don't have the mental ability to preform in academics. I would go back and talk to your counselor. There is NO REASON why you should be blamed for something you have NO CONTROL over.

    sincerely, a fellow narc-ie

    May 7, 2012
    1 like
  • brenmrg2

    I totally understand and feel your pain. I couldn't finish the college education that I started. I believe that if I didn't have narcolepsy my life would be so much different and better in so many ways. During college I worked full-time too so I was a walking zombie and felt horrible every day. Thinking back I don't know how I did it...only thing that allowed me was my work ethic and determination. I also have sleep apnea as well so I thought that was the issue all along and I suffered for over 10 years before I was diagnosed with narcolepsy.

    Apr 15, 2012
    1 like