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I Have Narcolepsy

I Am So Excited!!!!!

By: Dianeklu
Written on October 31st, 2009

I always thought that it was just my personality. I would always say " if I am not moving, I am sleeping."

I fell asleep in every class (except for gym) in high school, almost every class in college and all the time at work if I had to sit for too long.

For my job, I often have to go to court and always fall asleep. (luckily never fired) Finally someone said to me..."You have narcolepsy."

After researching it, I am 100% certain that I do. I have made a Dr.'s apt and can't wait to be properly diagnosed and medicated. I am so tired (no pun intended) of waking up tired and walking around with my head in the clouds.

I have complained to my Dr. about constantly being tired in the past and he blamed it on allergies.

I went to a nutritionist and she blamed it on candida.

Well I take pills for my allergies and did a candida cleanse and although I felt slightly better, I am still @&*#'n tired all the time!

I will update y'all after my apt's on my progress.

I am just so excited that there is a chance that THIS isn't it. That I can feel fully awake again and wake up feeling refreshed.

 

By: Dianeklu
Age: 36-40 , Female
781 people have read this story

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2 responses
  • Dianeklu
    Dianeklu

    Thanks for your support. I am also on 37.5 of Effexor, I have just weaned down from 150 mg. I was looking forward to being drug free but I will gladly take something to have a good nights sleep and be awake in the morning. How come you moved to th states?

    Nov 4, 2009
    1 like
  • LeighEsprit
    LeighEsprit

    Oh, I know what you've gone through, poor baby!



    I grew up tired, was always tired, used cigarettes to keep me awake, but when I quit 25 years later life was so difficult.



    I can't drive for 20 minutes without needing a nap. I get an exhaustion headache band around my head all the time.



    This condition made school and holding down a job very tough.



    I don't know why I am like this but I found a drug that has made my life normal. It may not be good for me but I don't care. It's called Provigil -200 mg ( I also take a very low dosage of Effexor 37.5) I've been taking it for 2 years. You'll want to have a drug plan in place before be prescribed this as it is expensive. (I live in States now but am from Toronto)



    Lately, I've come to suspect a form of sleep Apnea that is often missed. I have an appointment with sleep specialist next week.



    Good Luck!

    Oct 31, 2009
    1 like