My disease takes up my whole life. Spending weeks at any time in hospital. For surgery or treatment to strengthen my bones. I was born to late. Had I been born a few years later the research for my condition would strengthen my bones massively. But it would of been given during my growth. Now it can't board a plane because the change in air pressure will break my bones. I have lost all dignity because just about all nurses at my hospital have seen me naked trying to help me go to the toilet. Trust me. When 3 out of your 5 limbs are in cast you take any help you can get.
legendgirl legendgirl
18-21, F
1 Response Sep 2, 2014

Wow. So sorry for you. I hope there will be some relief for you at some point. I believe there is always hope. A Dr. once told me I had 6 mo or less to live. I asked him if the prognosis was signed by God. She looked at me inquisitively. I laughed and went on enjoying what I could thru' my pain. Over 30 yrs later still here with even more health issues, but here and laughing at life. Bless you my dear.