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This Goes Out To You Dopamine Girl!

A dear friend of mine, who watched a friend of Hers slip into the madness of Parkinson's medication, said it best:
"You take a perfectly sane person with a mobility disorder and turn them into a person who can move and function, but is slowly going crazy."
Here's my Mom's pill regimen:

6AM (or 3am, 4am, it doesn't matter to her. The fear of waking up frozen is so great, she'll take the meds at Midnight if She wants to. This against Dr's orders but.. hey, what is a son to do? Let her lie in bed in pain, trapped, for an hour or two?)

- Comtan, Mirapex, 1/2 of a Sinemet 25/100 Quick Release (QR), Sinemet 50/200 Controlled Release (CR), Levothyroxine

9AM (or approx. 3hrs later)

- Sinemet 25/100 (QR), Mirapex

12PM

- Sinemet 50/200 (CR), Comtan

3PM

- Sinemet 25/100 (QR), Mirapex

6PM

- Sinemet 50/200 (CR), Comtan

BEDTIME

- Sinemet 50/200 ( CR), Comtan

And then she has her "cheaters", which are 1/2 tabs of the Sinemet 25/100. She takes one of these at bedtime in addition to her prescribed, at least one during the overnight if she's having trouble getting settled, and she pretty much will take one whenever she feels like it.

Of course this is artificially pushing herself until she crashes which she always does, usually about every 8 days or so. When she's "on", she's rearranging the cabinets, closets, painting the kitchen, office work.....

And She's got the Dr. Jekll/ Mr. Hyde thing going on. Ruthless and downright mean or desperately forlorn and afraid.

I was "on call" 24/7 for over 5 years. Dropping whatever i could to go and rescue her. Now I go over (I live with my 96 year -old grandmother who is in excellent shape) at 4PM and stay through the night till 6:30AM. The obsessive compulsive tendencies she has developed, most of which are linked to the Mirapex and Sinemet have cost her her house, her dignity, and many of her friends.

Yeah PD and the drugs they use to treat it are F%&$D UP!
johnnybliss johnnybliss 41-45, M 4 Responses Aug 22, 2010

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I care for an 89 year parkinsons patient .She is mentally clear till I give her the senimet and mirapex.Then she can not talk gets cunfussed dreams crazy things.And she can not walk even with the meds .5 stage .Sometimes I think it would be better at this stage no meds or very little.

I care for an 89 year parkinsons patient .She is mentally clear till I give her the senimet and mirapex.Then she can not talk gets cunfussed dreams crazy things.And she can not walk even with the meds .5 stage .Sometimes I think it would be better at this stage no meds or very little.

i need to comment but i think i should just write another story

they said i have parkinsons and i trhow all the pills away