What A Way To Start The New Year! Part 3Now i want to begin this last (hopefully) story about my first 12 days of the new year and the bummer situation i had to deal with by saying this:
And i also want to state that i don't really hold a grudge against any of the doctors or staff that oversaw my mom's "rehabilitation". Or necessarily think they're complete idiots. Perhaps a little ignorant about PD. Hell, we all are. But that doesn't mean there's never going to be of coping with or treating PD, (i hesitate to use a word like cure) Take something like appendicitis, for example. My great-great grandfather died on the dining room during a crude surgical procedure that sought to remove his appendix. My grandma had lapro-scopic surgery when she was 95 to remove hers, and they were ready to release her later that day! But kept her another night because, well, she was 95 years old. A couple years later she had a corneal transplant. She's 98 now.
Doctors and medical folks have crappy jobs. For one, they have to deal with sick people all the time. And let's be honest. Sick people are generally self-centered, needy, complaining, and no joy to be around. Also, the medical teams at hospitals have to be ready for anything. So the general approach they start off with in diagnosing a new arrival makes sense. And a disease like Parkinson's that can manifest itself in many different ways doesn't make their job any easier...
BUT STILL!!!!It just seemed odd to me that i had to bring in a wiki article explaining Sinemet for them to change her meds to something resembling her old schedule.
I had to challenge the neurologist and the attending on two different occasions to get my mom meds that would keep her from freezing up and stiff as a board for hours on end. And then that still wasn't really effective. The timing was all off. After a week in the hospital, with little improvement in my mom's overall disposition and general health, i had to start filling in the gaps in her med schedule by feeding her additional pills in between the times they had scheduled for her. But the Parkinson's then gave the front seat on this ride to a nasty chest cold (i had one the whole time as well) and well, my mom's trip to the hospital was one that just seemed to go on forever.
i'm exhausted. She's home. She's fine for now. Hopefully she will embrace the physical therapy that will begin next week and try to eat better, get more fresh air.
Parkinson's won't kill you. It will just make your life and the lives of those around you miserable....
if you let it.
i won't let my mom let it get the best of her. i love her too much.
we'll figure it out. i got no reason to believe that actually, but i do.
johnnybliss 41-45, M 1 Response 1 Jan 15, 2012