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If You've Been Diagnosed...

My father has had MSA for (as diagnosed) 4 years. Just in the past 6 months he went from being able to drive to not being able to get himself into bed by himself. Its very difficult for me since I can't lift 175 lbs, I can do 60 lbs max. I've had to lift him off the floor with a belt and its killing my back. He refuses to go live in assisted living and assumes that I should do everything for him. I don't have power of attorney so I can't force him into care and I can't hire someone to help me without his consent either.

Please don't do this to your family. Move into a retirement community and when you get too ill to care for yourself, transfer into assisted living. Allow those trained personnel to care for you. Yes, its expensive, though you'll get 3 meals a day, medication regularly, you'll have help getting into bed at a reasonable hour and they have activities so you won't just sit in a chair watching TV or staring at a wall for the entire day. Its better than you think.

I wish I could convince my father to go live somewhere like that. I just don't have the skills to do all that he requires of me. My life is basically over till months after he passes away. Who knows how long that will be. Or, if things keep on going the way they are, till I do. Don't do that to your family. Please!

4vrUnique 4vrUnique 46-50 2 Responses Apr 6, 2010

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It is hard and excruciating! Thanks for your comment HeartofHearts.

will he not even consent to an in-home caregiver? that sounds so hard...