I Have Paroxysmal Kinesigenic Choreoathetosis
Since last year I have been diagnosed with this. I was 13 at the time (just before my 14th) I think but I noticed the symptoms ever since I moved to Scotland from Thailand when I was 6 years old. Already I was different but this made me feel more alone.
I've had it for around 9 years now and I've never met anyone with the same thing and I was hoping it would, in some way, help me.
At first I began trying to diagnose myself, trying to find a label. A label meant someone else out there had it too and it kind of gave me hope. At one point I even thought I had Tourette's. It was hard telling anybody because I didn't want to burden them and I still don't. When I finally got the courage, nobody believed me. I was constantly bullied by my sister at home and separated from other children in primary school, making me become a speculation. There just wasn't any time to be myself.
Having PKD has made me mature a lot faster than I would have without, I think. It's made me a lot stronger anyway so the little things just don't bother me anymore (: Last year I began taking Tegretol - which you're probably already familiar with. They worked pretty well to begin with. It's helping me control them but some days are worse than others. Next year I'm having a little trial off them to see how I cope. I'm quite anxious to see if I have improved at all.
For now I'm just trying to enjoy the fun times that come by and right now I'm aiming my studies to becoming a psychologist because I love studying about human behavior and the subconscious mind. I've never seen any teenagers on Youtube or blogs write about having this, only adults so I don't know how I can relate however I am comforted by reading these stories just to remind myself that I'm never alone. It's kind of late at the moment, I don't like doing this kind of thing in front of my mum, I hate to worry her, so I'm hoping my story makes sense.
I've had it for around 9 years now and I've never met anyone with the same thing and I was hoping it would, in some way, help me.
At first I began trying to diagnose myself, trying to find a label. A label meant someone else out there had it too and it kind of gave me hope. At one point I even thought I had Tourette's. It was hard telling anybody because I didn't want to burden them and I still don't. When I finally got the courage, nobody believed me. I was constantly bullied by my sister at home and separated from other children in primary school, making me become a speculation. There just wasn't any time to be myself.
Having PKD has made me mature a lot faster than I would have without, I think. It's made me a lot stronger anyway so the little things just don't bother me anymore (: Last year I began taking Tegretol - which you're probably already familiar with. They worked pretty well to begin with. It's helping me control them but some days are worse than others. Next year I'm having a little trial off them to see how I cope. I'm quite anxious to see if I have improved at all.
For now I'm just trying to enjoy the fun times that come by and right now I'm aiming my studies to becoming a psychologist because I love studying about human behavior and the subconscious mind. I've never seen any teenagers on Youtube or blogs write about having this, only adults so I don't know how I can relate however I am comforted by reading these stories just to remind myself that I'm never alone. It's kind of late at the moment, I don't like doing this kind of thing in front of my mum, I hate to worry her, so I'm hoping my story makes sense.
By:
todayistoday
Age:
13-15
