Parsonage Turner Syndrome Following Flu ShotYou know how you just know something is wrong with you and despite everyone around you thinking you are crazy, you just know it. Well, I have felt like that for quite some time. I started out with feet problems which after much ado was turned into a diagnosis of advanced peripheral neuropathy. Well, about 10 days ago I as at my PCP and she offered me a flu shot, which I have taken every year without any issues. About a day later, I started having severe pain in the area of my arm around the shot and within a couple of days it was so severe, I could not function. I called my PCP to tell her about this reaction and she was really flumoxed! Her nurse had given shots for many years with no reactions. But, obviously I was. So, she normally would have prescribed Neurontin and Cymbalta to calm the nerves, but I am already on that for my neuropathy! So, she gave me pain meds in hopes that would get me by. A day or so later, my upper back near my neck was really killing me so I called her back thinking I had strained my back from the tension of the pain or something and told her the pain meds weren't doing anything and maybe a muscle relaxer would. So, we tried that. I did get some relief. But, this weekend, the pain was still not going away, though not as acute in the shoulder, but an added concern was tingling and numbness in my fingers. This morning I got up and while showering felt I was lifting 400 lbs weights lifting my arm up to wash my hair.
So, I called my neurologist and got in later today. Almost immediately, she diagnosed PTS, saying my symptoms were fairly classic of this disorder. But, because of my neuropathy, she couldn't rule out the two being related in some way. So, she gave me a course of steroids to hopefully calm any inflammation and tomorrow I go back for an EMG. I keep wondering if I could have MS and all these are symptoms adding up to that? Who knows. Bottom line is right now I am considered to have PTS and am freaking out at the prospect that it will take years to resolve. I used to think I was good at handling pain, but in the last year or so, with the unending pain in my feet and legs and now this... I don't know how people with chronic pain handle it. I really don't.
I'll keep you posted, and would love to hear if anyone else has had any other nerve-related issues and if that may make someone more prone to getting this or if it is just more likely part of a bigger issue. Or maybe I'm just a hypochondriac!