Ignored For Years And Finally Diagnosed.

I am 26 years old and I just found out a few months ago that I have PCOS. For 2 years I was seeing a different doctor because they were the best doctor that my crappy insurance would allow me to see. For 2 years I didn't have a period and I would tell them that I was worried about it because it wasn't normal. They said it was a side effect of my birth control, which I told them I had stopped taking for 4 months each time and still no period. They ignored it and sent me on my way. I knew something wasn't right. Before those 2 years my periods had always been excruciatingly painful and sometimes irregular. But once again that was something I was told was normal.

I was lucky that I changed insurance and was able to go back to a very good OB/GYN practice. When I went in to see them in November it was because of a lump I found in my armpit (which turned out to be a very bad zit). During that visit the doctor asked me the normal questions, last period? I told him, nearly 2 years ago, some spotting from time to time, and before that my periods were always very painful. I also told him that I hadn't been taking my birth control the last few months and I still hadn't had a period. He ran some blood tests, put me on progesterone for 10 days, and had me come back to see him 3 weeks later.

After the 10 days of progesterone I finally had a period. When I went back and told him he said, "Kelly, your blood tests were mostly normal, however the fact that it took that much progesterone for you to ovulate tells me that you have something called polycystic ovarian syndrome, or PCOS." I had no idea what that meant but I knew what was important to me was the ability to have children, so before he could start explaining it more I blurted out, "Will I be able to have children?" He looked at me and said, "Maybe, you will probably need help to do it. In the meantime I am putting you back on BCP and you need to start taking Metformin every day to keep your ovaries as healthy as possible." I just started crying. He assured me that of all fertility issues this was the most benign.

Reading all of these stories scares me because I really want kids some day. I'm in nursing school right now, had to move home to afford school, so I am in no position to have a child now. I am also angry because for several years this was going on and it was ignored. They didn't even try to do tests. Has anyone else had similar experiences? Have any of you been repeatedly ignored until finally someone bothered to look?
Kelly212 Kelly212
2 Responses Feb 20, 2013

i was about 19 when i was diagnosed and before then only had 3 full periods, sure doctors were concerned but never really did anything about it. Finally my new family doctor wanted to send me for testing and all that.Partially due to the fact that half my thyroid was swelled to the size a bit smaller than a fist. It ended up being a goiter and had to be removed. But anyways I know 2 sisters that have the same thing and both have children. But i like you am still worried about being able to have children. Also you seem like you need a hug. :hugs!:

For me, since the moment I had my first period my Dr at the time told me I would always have irregular periods since I started so young. Anyway, I had symptoms related to PCOS for years but my Dr's would only check my thyroid.

It wasn't until I was 20 that I asked to be put on birth control to help with my pms, before they could prescribe them to me they had to do some blood work first. And that's when they found out I had PCOS. Kinda wish I had asked for birth control sooner