I was diagnosed with PVNS in 2006 (at age 25) and had open surgery in three places on my right ankle. Now in 2008 its back. My doctor (new doctor, moved from New Hampshire to D.C) says it may be hard to get to with surgery but for some bizarre reason doesn't seem to be wild about Radiation Therapy options. I've heard radition is the best treatment for people with difficult to reach PVNS. Anyone have experience with radition treatment?
If so, did you have the radiation before, the same day, or post synovectomy (and if so, how long after surgery)? (I'm trying to figure out if i can fit it in before my insurance period ends). I'm supposed to be going on a vacation to the dominican republic this christmas but am not sure if my ankle will heal well enough in time!