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Growing Up With Pvns

I am 30 years old.  I have had knee troubles my whole life.  Ever since I was old enough to talk, I would tell my mom and dad that my knees hurt.  My pediatrition told my parent that they were just growing pains, but finally when I was just 11, my parents took me to a bunch of different specialists.  I was diagnosed with PVNS when I was 12.  I had a few different surgeries on my left knee and was told that I would be in a wheelchair by the time I was 30.  This of course scared me to death, because at this time, nobody had really seemed to know what this disease entailed.  Since then, I have been to several more doctors, and I am obviously not in a wheelchair.  Over the last several years, I have discovered that I have this in both of my knees.  It is very painful and the only conclusion I have come up with to get rid of it, is by getting knee replacement surgery.  I am very scared.  I have always dealt with the pain, so it freaks me out to think about what it would be like to actually have "normal" knees.  I also think about all the complications that could come along with it.  Does anyone have any advice for me?

spillies262 spillies262 26-30, F 2 Responses Oct 7, 2009

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Oh my goodness! Your experience is so like mine! Had it since so young and Drs blamed on growing pains...for me they didn't get it right til 25!!!!

Get the surgery!! Your life will be amazing and you´ll wish you had done it sooner. The technology they have today is outstanding! Embrance positive change in your life!!!