I Have Pigmented Villonodular Synovitis
I am 30 years old. I have had knee troubles my whole life. Ever since I was old enough to talk, I would tell my mom and dad that my knees hurt. My pediatrition told my parent that they were just growing pains, but finally when I was just 11, my parents took me to a bunch of different specialists. I was diagnosed with PVNS when I was 12. I had a few different surgeries on my left knee and was told that I would be in a wheelchair by the time I was 30. This of course scared me to death, because at this time, nobody had really seemed to know what this disease entailed. Since then, I have been to several more doctors, and I am obviously not in a wheelchair. Over the last several years, I have discovered that I have this in both of my knees. It is very painful and the only conclusion I have come up with to get rid of it, is by getting knee replacement surgery. I am very scared. I have always dealt with the pain, so it freaks me out to think about what it would be like to actually have "normal" knees. I also think about all the complications that could come along with it. Does anyone have any advice for me?
