Angelinas Story

OK MY STORY GO'S AS FOLLOWS I'M A 33 YR OLD CHRISTIAN WOMEN,  I WAS DIAGNOISED WITH PV ON JULY24TH 09.  AT THAT POINT MY BLOOD COUNTS WERE 59.8 I WENT THRU 2 MONTHS OF EVERY WEEK PHBHS.   I DIDN'T KNOW WHAT I HAD CAUSE MY DOC AT THAT TIME WAS MORE FOCUSED ON GETTING A NEW GF THEN MY HEALTH SAD BUT TRUE, THIS ALL HAPPENED IN TN.  I'M NOW BACK HOME IN FL AND AT A VERY GOOD DOC THAT FINALLY GAVE ME A NAME FOR WHAT I HAVE AND I'M ON BLOOD DRAWS ONCE EVERY MONTH NOW.   BUT STILL DON'T HAVE ANY AMSWERS AS TO WHATS WRONG WITH ME.  I HAD A BMB AND JAK2 TEST DONE AND BOTH CAME BACK FINE, WEIRD HUH LOL.... BUT I STILL HAVE PV NOW THEY THINK ITS SECONDARY PV SO I GO FOR A CT SCAN ON TUES O0O WHAT FUN.  I'M REALLY HOPING THAT NOTHING SHOWS UP CAUSE THAT MEANS MORE TO WORRY ABOUT THE JUST PV.  I HAVE A VERY UNSUPPORTIVE MOTHER AND SIBLEYINGS  MY LIL SISTER IS THE ONLY SUPPORTIVE ONE I HAVE BESIDES MY ONLY 2 FRIENDS CHAD AND MARCY,  I JUST LOST MY BESTEST FRIEND AND MY STRENGHT JAN 26TH 2010 I'VE BEEN A MENTAL CASE SINCE THEN, SHE WAS MY EVERYTHING. SHE PASSED ON FROM HER 2 YR FIGHT OF INFLAMORTY BREAST CANCER. SO I DON'T HAVE MANY PEOPLE IN MY LIFE MY BF OF 7 YRS DOESN'T SUPPORT ME AT ALL I REALLY JUST WANT HIM GONE BUT HE WON'T LEAVE LOL GO FIGURE LOLI HAVE 2 GREAT DAUGHTERS ONE 11 AND THE OTHER 4.5 HEHE .. WELL THATS ABOUT IT ANYTHING ELSE YOU WANT TO KNOW LET ME KNOW;)

jorlinna jorlinna
36-40, F
3 Responses Feb 7, 2010

Hi I was also diagnosed with PV about the same age you were. How has it been. Did you started Hydrea?

This is the place to come for support. Just know you this past June are not alone with this problem. I was told this past June I have Polycythemia but I am believing I can beat this thing and so can you. Stay positive!

I'm sorry :( I'm rooting for you! I have PV and was diagnosed in August.