I Have Pmr

I was diagnosed with PMR in February 2009. For over 5 months prior to the diagnosis, I lived with the pain. I exercised, took over-the-counter pain pills (Aleve, Advil, Ibuprophen, etc). I went to the doctor several times during those long months and he could not tell me what was wrong. I felt like I was becoming a pest and a hypochondriac. I began to feel worse and worse and finally went back to my doctor and cried while I told him he had to do something about my pain. I hurt in places I didn't know I had. My doctor did a blood test and my sedimentation rate was very high (100) and he explained that I have PMR. I went to see a rheumatologist and he put me on Prednisone (40mg) to start.

At the time I could not use my hands to sign my name, open a bottle of water, comb my hair, etc. Walking was becoming a problem. I was still working full time so the new doctor kept me from work for 8 weeks. The Prednisone helped and the pain subsided. In addition to feeling better, I began to gain weight!! Lots of weight! My heart began to give me problems and breathing became an issue. I could not walk from the front door to the driveway without breathing heavily. Anyway, after 8 weeks off I returned to work using 40mg of Prednisone. I also have high blood pressure and taking meds for it.

As the months went by, the dosage was dropped to 20mg then to 10mg. I stayed on 10mg until May 2012.

This past May I had a stroke. I am truly blessed because I am not handicapped in any way. The doctors put me on Plavix and Bayer aspirin in addition to all other meds I was taking (including the Prednisone). I stayed in the hospital for 8 days. After 2 days at home, I started bleeding from the rectum. I received 5 units of blood and stayed in the hospital for 10 days. The doctors stopped the Prednisone and the aspirin. I am still using Plavix.

More happened, but the bottom line is this, I still have PMR and the pain is excruciating. I hurt all over. Recently, I've been given something to use that stops the pain. There are no side effects because the product is non-transdermal. After I have used it for a couple of weeks, I'll let you know what it is in case you might want to give it try.
lvacla2013 lvacla2013
70+, F
3 Responses Dec 3, 2012

I know what you mean about the weight gain. I gained so much. For other medical reasons, I had to stop the pred and now the pain is bad, very bad. My rheum. gave me Vicodin, which makes me sleep around the clock. I really wish I didn't have to take it, but I have nothing else. If what you're trying is helping, could you share?

Hi Debra213. Thanks for asking. I have been using a product called "chips". It is like acupuncture without the needles. The chips are placed on the area of pain.. The relief is awesome and the best part is that they are non transdermal so there aren't any side effects and no contraindications with other Meds you may be taking. I m a happy camper. I don't think I can put a link in this forum. And I don't know if an email address is allowed. Here it is anyway. Contact me at Delores.clay@gmail.com and I will tell you how to get a sample to try.

I'm so sorry to gear about your story. I have been diagnosed with PMR for 5 months, but suspect I've had it for 2 years prior but misdiagnosed. I'm hoping you feel better as I post this message.

You might like to try Heal N Soothe, which is an all natural product with enzymes that has almost completely eradicated my husband's PR. I found it on the internet by chance and thought I would give it a try as he had to stop taking Prednisone. By some miracle, within 3 days, almost all of his symptoms were gone - and he had severe allover muscular aches. It is found on: losethebackpain.com. Good luck!