Just Diagnosed.Hey there, i'm Emily, i am fifteen and have been living with Postural Orthostatic Tachycardia Syndrome for five months now but i was just diagnosed today. For a long time me and my family thought i had Pots although doctors wouldn't take it seriously but after having a tilt table test last week, results showed that i do infact have it. i have litteraly been bed bound for these five months and unable to go to school. over this time have had so many tests you wouldn't believe! a year a go i was a perfectly healthy teenager but that all changed in December after going to a concert one night. i had been stood up for the whole evening when i suddenly felt like i was going to pass out, i could hardly hear anything and had to leave. Ever since that night i have been ill and had faintness when i stand up. Soon i will be put on medication but i'm scared what's going to happen if they don't help, will i just have to stay like this? my friends and family have been so supportive and it means so much but sometimes it's hard when they can't understand fully how i'm feeling. We're all going through pretty much the same thing and i'd love to talk to anyone who is willing. thank you!
EmilyJanee 13-15, F 6 Responses 0 Apr 20, 2011