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I Have Postural Orthostatic Tachycardia Syndrome

What Is Wrong With Me?? Finally I Get An Answer....

By: conversegurl75
Written on May 16th, 2011
Age: 31-35 , Female
1,091 people have read this story

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    mchorton

    I'm sorry you are having to go through this. It's difficult enough dealing with POTS, let alone trying to deal with family and friends. My husband is very understanding but for the most part my family and friends don't get it. My husband has been there for the very scary situations when I've fainted and have been unresponsive, so he understands. But for everyone else, they are just hearing me describe it. Plus I look completely normal and well, so they just don't get it.

    Sometimes when I feel really bad I'm so ready to give up and just quit my job. At least we can be encouraged that others are going through the same thing.

    Jul 5, 2011
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    conversegurl75

    this is amazing! thank you so much for sharing!! I had no idea what was going on. Good Luck and please keep me posted on your daughters progress!!

    Jun 1, 2011
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    1mastover

    my daughter is 17 and has fought this for 2yrs. she has told me (off handly) that for the past 1yrs she gets her numbers mixed up....i've just started taking her to a dr. that specializes in Cranio-Sacral Therapy....he was suggested by a Chiropractor i know....during the 1st visit while working on her he ask "Do you get your numbers or letters confused?" wow! we were shocked! he said that is also a sign of the pituitary gland not working....which is the bases for all of pots. your not crazy....my daughter is going thru the same thing....people see her as a healthy happy person....but thats what she shows them...they dont see under that! we have given up on doctors (the meds just make everything worse!) and i truly believe this disease is a domino effect...one thing shuts down which causes another things to stop working right....so i'm going back to the basics...how to get her body healthy and balanced .....what can it hurt!

    Jun 1, 2011
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