Im 14 And Ive Had Postural Orthostatic Tachycardia Syndrome For Almost 4 Years!When I was 11 I fell off the high bar at gymnastics. I was Diagnosed With a concussion. I began Vomiting daily no pains, nothing, just vomiting. After about 2 months my Dr. told me that I had post concussive syndrome. I kept getting sick week after week. I went to school until Summer vaca where i continued getting sick, (now with pain, dizzyness, an exteme headache) When summer came it slowed down a little. It continued like that for the whole summer. During my 7th grade year it got worse and worse. I was vomiting more then 20 times a day(intensely) and always had extrme pains in my abdomen and head along with dizzyness. I went to school my 7th grade year only for 3 monthes. I kept getting Diagnosed with different things that ended up being ruled out. This continued through summer and 8th grade and got worse and worse. I would go to the emergency room up to twice a week now with symptoms including: vomiting, headache, dizzyness, stomache pain, chest pain, tightness in chest, feeling like i couldnt breathe, and joint and muscle pain! Every doctor i saw said that i was either faking it or it was not serious enough to be at the emergency room and that i needed to get over it and sooner or later I would out grow it. i went to school about 3 monthes out of my 8th grade year as well, that summer I kept getting sicker and sicker and life was miserable, I lost my social life because I could not hang out with friends, i kept gaining and losing weight on and off and it was miserable. I started to feel like i wasnt worth it and got very depressed. I didnt know what to do with my self. I was now getting sick about 30 times a day and I hated myself. 9th grade started this year and I only went to school for the first 2 days. I have the same symptoms including bad sleeping habits(not being able tosleep) and the other issues. I have been diagnosed witrh about 40 different things because doctors gave up and would randomly choose something to tell me I had. I was diagnosed with fibromyalgia due to my aches and pains and I had over 100 blood tests, was told multiple times I was faking, or was just dehydrated or some other crap, and had multiple stomache and brain cat scans and mris. I had multiple x-rays on bones due to saying i was in pain and had 2 ultra sounds. I was also told multiple times I was prob. just prego! Recently I saw an article by Dr. Phillip Fischer about Pots(postural orthostatic tachycardia syndrome) i have not been tested yet but i guarantee this is what it is due to symptoms being identical. I still fear this may not be it due to being let down sooo many times. You never want anything to be wrong with you but I NEED an answer to end my misery! Normally I wouldnt share my story but hopefully someone else like me will see this and know whats wrong with them and not have to go through what i went through!
levasseur97 13-15, F 3 Responses 0 Jan 13, 2012