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I Have Postural Orthostatic Tachycardia Syndrome

Im 14 And Ive Had Postural Orthostatic Tachycardia Syndrome For Almost 4 Years!

By: levasseur97
Written on January 13th, 2012
Age: 13-15 , Female
509 people have read this story

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3 responses
  • Pog13

    You seem to have been through the mill,hope you are on the right track now health wise,can't believe doctors can be so clueless, terrifying to think you're gonna die and then you go for help and they have no idea what to do,i have an ongoing irregular heart beat,not as severe as yours,but i know the fear involved.

    hope you get well soon!:)

    Jan 30, 2012
    2 likes
  • levasseur97

    Thank you soo much! Its nice to talk to people that dont just assume something made up or assume nothing is wrong!

    Jan 30, 2012
    1 like
  • laurassummername

    Your story sounds so familiar to so many others that I've read. Doctors can't figure it out so they say things that hurt over and over again.



    Depending on where you live, find a Mayo Clinic or a hospital that has a tilt table test. (Even if you have to schedule it way out, and drive far, and pay a lot of money, it will be worth it. They specialize in the mystery illnesses that no one else wants to touch.



    Your illness is real. You are not crazy. You are not alone. You are loved.

    Jan 18, 2012
    3 likes