Realizations

There are over 5 teenage girls in my area that have POTS. 2 of them are from the same school I went to 6-8th grade. Most of us go to the same Dr. He is actually a Hematologist/Oncologist, but he is the smartest man I have ever met so it makes sense that he would be the one to diagnose us all.
My mother (a nurse) and my Dr. have realized that all of our (the pots girls) conditions get worse when the weather changes.
We haven't figured out why, but every time there is a cold front, storm, warm front or any other weather change, we all feel awful.

Has anyone else noticed this?
Clb14 Clb14
18-21
5 Responses Jan 21, 2013

In spite of living in Florida, I haven't noticed that. I'll have to pay more attention. I remember reading a humorous post on EP about "you know you have pots when", and one of the entries is "51. Your body can gage the weather more accurately than the meteorologist."

stories/Have-Postural-Orthostatic-Tachycardia-Syndrome/2110178

I have noticed, but really haven't made a connection with that until just now. I have no idea why, but My friend and I who both have pots have been out of school for weeks because the weather has been so crazy.

I have not noticed any differences with changes in the weather but my neighbor can predict when a storm is coming by how she feels. She is mainly affected by low pressure fronts. She said all of her POTS symptoms flair, especially fatigue.

I'm not actually diagnosed, but I really think I do have POTS. I definitely feel sooo much worse during changing pressure systems. I just get tired and achy and have migraines and nausea and dizziness so much worse! It's like, there isn't just one thing to point to, like my mom who has a knee that aches when the weather changes; for me, my everything aches!

yes many in a group i am in have the same reaction. it has been attributed we think the rapid change in barometric pressure which probably restricts blood vessels especially with rain and with heat it exasperates our symptoms. Some are better in cooler weather while others are better in warmer most though are better in temperate tempertures. I am wondering with the barometric presure changes when they seem more rapid it is worse for me then when they are less and done over time. I do find when cold out for me anything below 55 and anything above 90 I seem to have more symptoms. I also have Ehlers Danlos Syndrome on top of the POTS as well as lymphedema and lipodema so I think I may be a little more sensitive to changes and have thus learned with my body what I can and can not do and when have an active day I day a rest of rest in between because if I keep pushing self I have many a flare and symptoms are worse.