I have only talked to one doctor that has even heard of pots. I've never talked to another person that has this, and would like to. I finally found a name for all these problems that I've had over the past few years. Now, I'm just waiting until that day when I won't be able to stand again. I'm a stay at home mom with 3 kids, now I'm unsure if I'll be able to continue taking care of them.