I Hate POTS!!
So here is my story...
August 14, 2008: While driving down the road I have this sharp pain in my left chest and i start to black out. I manage to get pulled over and catch my breath, I thought I was having a heart attack and dying. So after a while I start to feel a little better but "dazed" and drive home. The next morning I still feel dazed and go to see my doctor and he thinks that i have an ear infection?(this was the first of many mis-diagnosis and worthless treatments that I have experienced in the past few years) All of you who have POTS already knows what happens next so I will skip all of the Doctors and Testing which all results come back "normal", Now I am on the 3rd and 4th round of various doctors here in town. (this dazed, light-headed, heavy-headed, dizzy, confused, exhausted, painful, dreadful, like a dream feeling has been a non-stop constant 24 hours a day everyday for almost 2 years now)
Fast forward to October 2009, I finally find a doctor out of town who supposedly knows about POTS and he does the Tilt Table Test and determines that I do indeed have POTS, now he refers me back to my cardiologist here in town for treatments..
Well here is where the problem starts, My doc here says that I don't have POTS, he insists that I need a pace maker, now I left that detail out but he has also did the tilt table test on me 6 months prior and he wanted to give me a pace maker, instead he implanted a Loop Recorder in my chest (which has never shown any "abnormal" results) so now I am stuck with a device in my chest, a nasty scar and a doctor that will not treat me..
It seems that this is getting worse and I have not been able to get out of bed since Christmas, and everyone seems to treat me like I am just being lazy and faking it. Trust me I don't enjoy lying in bed all day everyday..as I am someone who has always spent most of my life outside with my job or even off-time I was always outdoors..
I am a single Father with a 15 year old son and unfortunatly I got sick the year he started high school, so I have missed out on most of his sporting events and stuff like that, which has really been hard on me.
Also I have noticed that most of the people who have POTS seem to be women, so I guess it is one of the reasons that my doctors have overlooked this the first time around.
I live in Texas. So, if anyone has suggestions on Doctors or can point me in the right direction, I would really appreciate it... As I am finding out most doctors are in the dark when it comes to POTS.. Any help would be great...