In January I was finally diagnosed with POTS. For the past three years I have been being misdiagnosed with depression, migraines, and other stuff. It was really hard because my family didn't know what was wrong with me and/or if I was making it all up. I'm 16 years old and I'm supposed to be a junior in high school. Unfortunately in my freshman year I made it through about half of the year and then I wasn't able to make it to school in the morning and if I did I had to leave early. Soon enough they had me doing Homebound school which didn't go great because they had a counselor come and give me work to do... I don't think they really understood that I wasn't there to learn how to do the work. Then my sophomore year I made it through almost three months and I went back once. Around May we got a letter that my counselor had to unenroll me from school because I missed to much and I don't blame him. I've been feeling overall good sense around that time. I'm thinking that the stress was making it worse. You know, just the expectations that I need to get up and go to school. It was really hard. And now I'm not feeling good again and I don't know what to do. I'm taking one medication 4 times a day, another twice, and then they recently put me on birth control because my periods made my symptoms worse. There's no more room for them to up my dosages for those medications. And I've been drinking about 15 bottles of water a day. I just don't know why I'm not feeling good anymore. The heat / humidity has been one of the biggest problems for me. The worst part about this all is that my parents aren't even acknowledging that my pots is a problem. Whenever I tell them that I don't feel good they make a joke or tell me to drink more water. And when it doesn't get any better they just shut me out and ignore me because they can't do anything about it. They're also hoping my pots will be gone before school starts so I can go back to school even though we were going to be doing online school this year to catch up. It's really hurting me that it seems like they don't care anymore. It will get really bad sometimes and my anxiety will kick in and I'll feel like I can't breath and then I start crying and my dad just says I'm exaggerating or that I'm over reacting and making it a bigger deal than it is. He just won't except the fact that I'm not feeling good. I do have POTS. And POTS is a real thing & I know if they had it they would understand how debilitating it can be.
babyhunnybunny babyhunnybunny
18-21, F
3 Responses Aug 17, 2014

I'm sorry that you have to go through it without family support. I was just diagnosed recently but I have been suffering from the symptoms for 4 years, I know how you feel. Since you are drinking so much water, make sure you intake of salt it increased as well. That will help.

I am here I've had pots 4 years my parents understand but some in my family is not understanding

You're not alone in this ❤️ feel free to message me if you ever want to talk. It's awful when people close to you don't understand or invalidate your feelings by belittling your symptoms.