I Have Pseudotumor Cerebri
Hi, the year of 2010 I had seen a neurologist because i was having vision changes and extreme headaches, they did an MRI and also send me to the University of Minnesota too see the eye doctor, everything looked okay, but i knew something wasn't right. In 2011 i started having really bad headaches again, vision loss and vomiting. I went into the emergency room and they though it was stress headaches or allergies, my mother knew that wasn't correct because she has been living with Pseudotumor Cerebri for 20 plus years now, but that doctors said neurology isn't in there "field" so they sent me home on pain medication, which didn't help one bit. I went to the clinic a week after with the same problems, they gave me a pain medication called dilated to see if it would help, while walking out to the car after 20 minutes, I started vomiting everywhere I was brought back to the clinic, they did vitals, gave me a cold rag for my head and water, I was rushed into the emergency room for being incoherent, all i can remember is the doctors poking me with IV's and blood samples. My mother took me to the eye doctor, the eye doctor say swelling behind my optic nerve, not be able to see past it, i didn't know what that meant or what to think, until my mom told. I was scared because i understands what shes gone through and still is dealing with. I was sent back to the University of Minnesota to see a neurologist optimologist when he examined my eyes and dilated them, they stayed dilated for 4 days, so i went back and the neurologist November 2,2011 and the doctor said i was stage 4 out of 5 of possibly becoming blind. That day was just supposed to be an eye appointment. He sent me to get a LP and my pressures were severely high, they said if they didn't do surgery i could become blind the next day or in a few days.I was rushed into emergency surgery, the surgeon said there was so much fluid it was like getting a shower. They placed a VP shunt on the right side of my head and the tubing that goes down to my stomach, after surgery i was in the worst pain but because of the incisions. I thought the pain would be over at least for a little while. Well unfortunately not, December 11,2011 i went to the emergency room and a resident from neurology came down and tapped my shunt, he couldn't draw fluid he drew blood, so they admitted me and did surgery again and a blood clot caused my shunt to fail. I'm still getting used to having the shunt and dealing with this disease, but its really been tough for me. I haven't been healthy for 2 years and this added to it all..