Year Long Headache Diagnosed In Nov 2007
My story starts with a headache that began in May of 2007. I thought it was stress related, and didn't give it a whole lot of thought for a month or so. Sometimes i would get dizzy, light headed - have some funky vision loss, etc... Finally my friends convinced me that this was not a normal headache, and i should see a dr.
My PCP gave me some pain meds and said come back in 2 weeks. 2 weeks later, no change in the headache and no relief from Lortab. He sent me for CT scan and MRI, and then to neuro #1.
Neuro #1 decided that i had migraines and started trying all kinds of migraine meds that didn't do anything for the daily pain. I kept telling him I didn't think I had a migraine, but he was convinced.
I went for a second opinion to neuro #2. He said i had hemicrania continua, and this one med would make it go away, no problem. I tried that for a few weeks w/ no change in the constant headache, pain and other symptoms.
Back to neuro #1 who said that I would have to go to Boston or NYC, since he didn't know what to do with me. Fortunately, he mentioned that there was a new neuro at a local hospital who had recently relocated from NYC, and perhaps I should go see him first.
THANK GOD!! Neuro #3 immediately ordered a spinal tap, and diagnosed PTC. Now we are treating w/ Diamox slowly increasing the dosage. Regular visits w/ an opthamalogist. Going for LP #2 in a few weeks. Hopefully, we don't have to take the next step and start looking at a shunt.
That's my story, and i'm sticking to it.