Keeps Getting Worse And Worse... Hopefully Better Is To Come

Since my first post back in January I haven't really been on here much. It seems as though every doctor appointment I go to the news just keeps getting worse and worse. I received the spinal tap witch was the worst experience of my life, it was done under radiology witch I was told would be better. Not only could I feel everything they were doing even though they had numbed me multiple times, but my body was uncontrollably twitching and spazeming* witch led be to have a panic attack. The next day I was told by the study I was in to come in for testing even though I should have been resting. I was sitting stright up/ leaning into machines for 9 hours doing test after test witch resulted in the second worse pain in my life (the spinal tap being the first) and getting a spinal headache witch lasted about three to four weeks. I could barely open my eyes or move without it feeling as though I was being beaten badly. After all that I found a better doctor to treat me and he has put me on Diamox (witch sucks). Ive been on the medicine and loosing weight for a couple months now but my last appointment I had with the doctor he said there was barely any change at all and hes never scene someones optic nerve so swollen. So now Ive come to the last option witch is a weight loss surgery. I went to an information session a day ago about the process and will most likely be getting the surgery within the next three months. Its safe to say I'm terrified! Having Pseudotumor is already scary enough specially because nothing seems to be helping it like they thought it would. I'm sure the surgery will go fine but if the swelling dose not stop I'm afraid I'll be doing this all for nothing. All Ive ever wanted was for this pain to go away, Ive been dealing with it all my life I just want a pain free day. I just wish all of this wouldn't have to be so drastic but I suppose a lifestyle change is better then becoming completely blind... sorry if I rambled everyone
ScreamingSam ScreamingSam
18-21, F
2 Responses Jun 7, 2012

I just want to strongly urge you to try the Body by Vi. Your story is so similar to mine, you have no idea. Weight loss surgery also comes with a lot of issues. I know someone very close to me that did it just 2 months ago. She regrets it. I told her she should have tried this first. If you are planning to do this, give me 2 months to help you. Because I bet we could change how you feel, your body will start to recovery and you will feel great while losing weight. I know that it seems crazy that I push this product and it would seem to not work but it does. You don't even have to buy it fro me. That is not even why I am on here. I wanted to share that it can help. I really would love to help you and losing over 60lbs in less than 5 months I think I can. So just think about it. A expensive and life altering surgery, or a couple hundred dollars and life changing. Don't do the surgery. This is truely another option and it is safe for your body. Jamie

Hello, My name is Jamie. I have been dealing with this. I was also on diamox 1000mg. I am now med. free after starting a product 6 months ago. It changed my life. I am trying to have people sign up with me because my Neuro doc is thinking about giving this to patients to help them. I really want to see if it will work on others like me. I think this could be huge. Anyhow, I will give you my web page so you can look at it. At the very least you know that it is a possibility to get better. It is my goal with my company to work with PTC. It was the hardest thing I went through. I would love to share my story with you if you like. Anyhow if you choose to try it, I work with you over 90days, and let me tell you all my pain was gone after 3 weeks. Let me know if it sounds like something that you would like to try, because I would love to share it with my doc. We need to find a cure for this. Thanks for sharing your story. Jamie This is not a joke or a way to push a product. This changed my life and I will do what I can to help others. I can even send you a sample.