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Keeps Getting Worse And Worse... Hopefully Better Is To Come

Since my first post back in January I haven't really been on here much. It seems as though every doctor appointment I go to the news just keeps getting worse and worse. I received the spinal tap witch was the worst experience of my life, it was done under radiology witch I was told would be better. Not only could I feel everything they were doing even though they had numbed me multiple times, but my body was uncontrollably twitching and spazeming* witch led be to have a panic attack. The next day I was told by the study I was in to come in for testing even though I should have been resting. I was sitting stright up/ leaning into machines for 9 hours doing test after test witch resulted in the second worse pain in my life (the spinal tap being the first) and getting a spinal headache witch lasted about three to four weeks. I could barely open my eyes or move without it feeling as though I was being beaten badly. After all that I found a better doctor to treat me and he has put me on Diamox (witch sucks). Ive been on the medicine and loosing weight for a couple months now but my last appointment I had with the doctor he said there was barely any change at all and hes never scene someones optic nerve so swollen. So now Ive come to the last option witch is a weight loss surgery. I went to an information session a day ago about the process and will most likely be getting the surgery within the next three months. Its safe to say I'm terrified! Having Pseudotumor is already scary enough specially because nothing seems to be helping it like they thought it would. I'm sure the surgery will go fine but if the swelling dose not stop I'm afraid I'll be doing this all for nothing. All Ive ever wanted was for this pain to go away, Ive been dealing with it all my life I just want a pain free day. I just wish all of this wouldn't have to be so drastic but I suppose a lifestyle change is better then becoming completely blind... sorry if I rambled everyone
ScreamingSam ScreamingSam 18-21, F 2 Responses Jun 7, 2012

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