Not Quite Like The Rest...I am 22 years old and I was diagnosed with iih almost 2 months ago. I work at an eye doctor so when my vision began to feel funny, I had her look at my eyes and she noticed my discs were swollen so she got me an appt with a local specialist that day. They were wonderful and got me an MRI scheduled that day as well. They then referred me to a neurologist who I see regularly. I am taking Diamox like most of you, except I only take 500mg a day. I have the tingles but that's my only real side effect. My doctor has also prescribed me 2 medications for weight loss. Between the meds (Phentermine and Zonegran) and diet and exercise, I have lost almost 25 pounds and most of my symptoms have gone away. I feel amazing. I was and still am overweight so I still plan to continue losing weight in hopes of preventing the symptoms from returning soon.
I also received a lumbar puncture but had no complications with that either. My pressures were definitely high enough for my Dr. to diagnose me but I had no headache or pain afterwards.
I also have no headache as a result of my iih which I know makes me lucky. I really feel as though my weight loss has been a huge component of my healing process!