I Saw...rings...

A few years ago, I experienced headaches; this was unusual because up until that point in time a rarely experienced headaches.  Then one day I started seeing "rings."  I later found out that these silvery-gray circles were refer to by medical professional as "halos." 

I relayed my symptoms to my physician; she had a MRI done on me...nothing of significance was found at that time.  She then sent me to an optometrist who ran tests on me.  Upon completion of the tests, the optometrist insisted that I go to the emergency room at a local hospital; she wouldn't say why.

I was afraid, but I complied with her instructions.  After describing to to the medical personnel what was go on, they ran a CT scan on me; then the ER physician explained to me what was happening: it was believed that I had "idopathic intracranial hypertension."  I had never heard of this before.  I was told that it is a rare disorder and that I would have to have a lumbar puncture... .

 When I try explaining this to my family and friends about this, it seems to get minimized...I still seem normal to them.  I guess that's good for me....

 

fairplay1 fairplay1
41-45, F
4 Responses Jul 26, 2007

ahhhh, don't ya hate it when people tell you, "you look fine to me",,, "maybe if you get out you will feel better". Those people just have NO clue what all this about!

I can totally sympathize about telling your friends and family, and having them look at you like you are crazy. People around us think, "oh, she/he just gets headaches! what a hypochondriac". But in truth, we live in fear of that one horrible headache..the one that comes with nausea, blurred vision, facial numbing, etc. They don't understand because they don't have to live with this like we do. But maybe one day science can help us be normal again.

I'd like to hear more about your experiences since your diagnosis. I'm scheduled to see a neurologist in a few days for surgical evaluation to place a shnt in my head for the same condition. Hope you are well.

I know exactly how you feel. My mother keeps saying "Just get up and go, it'll make you feel better" It's hard to explain how bad the pain is to someone else who doesn't have the condition. My husband has been more supported, but it is still hard to convey the pain.