I Am So Glad I Decided To Search For Support Groups!

I am 22 years old and was diagnosed with PTC November 09. I went completely blind until my shunt was placed and the pressure was relieved. The pressure on my optic nerve caused me to permanently lose 85% of vision in my right eye and 30% of vision in my left. It has been a tough battle but I am getting there. No one in my town had ever even really heard of this condition. My partner only knows what the doctors say but she has no experience. She tries to help and be supportive and I appreciate her for that but it's just not the same as from people who know first hand, ya know? I just recently started getting headaches again and it is concerning me. I am going to call my nuerologist tomorrow and see if i can get in to see him. I would love to hear from all of you.

nikd63 nikd63
22-25, F
Mar 14, 2010