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Suffering Terribly With Psoriasis

I have had psoriasis for about 17 - 18 years.  About 85% of my body is covered.  I am completely uncomfortable in showing it, as i live like a priest - even during the summer.  I am the FIRST & ONLY in my family to have it.  I have gone from one dermatologist to another and on to another.  I have tried just about everything, topicals, biologics - natural - nothing works.  Ive taken soriataine, stelera, humira, enbrel, remicade plus creams and ointments which all have done nothing.  I almost gave up a year ago until a family friend, who also suffers from psoriasis mentioned to me that she is almost clear and anyone who comes up to her would NEVER know she has it.

I have recently changed doctors and I really had high hopes.  All I kept hearing is that they could help...so we are now trying Methotrexate along with Cyclosporine and I have been on the cyclosporine now for 3 days and it seems to be doing me more harm than good.  I have daily headaches/migraines, i feel achey in my hands, i am often very cold. plus other symtoms.... I have very low confidence in this treatment as everything else has failed me.  I am afraid to give up something that COULD help me - atleast be more comfortable.  I am at a loss, i dont know what to do.  Is there anyone out there who has been thru this type of therapy who can give me something to want to live for?
hoods hoods 36-40, F 7 Responses Jan 31, 2011

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I am surprised not one person has mentioned sea water and sunshine as treatment. My psoriasis went away completely while I was on vacation in Hawaii but came back about a month later. Other things I do for skin health that seem to help psoriasis is eat 4 tablespoons of raw sunflower seeds everyday (has vitamin E) and eat oysters about 1 a week (has zinc).

I am sixty-two years old and had psoriasis for over 45 years. Four years ago, I decided to become vegetarian because of all the material I was reading about the connection between heavy meat and dairy consumption and heart disease and cancer which is rampant in my family. I was very surprised when my psoriasis, which covered about 60% of my body started clearing. It is not completely gone--still some redness where it used to be--but all the thick white scaling is gone! Just a bit of rash look in some of the areas and that's it. And the joints that had been aching in the last few years are fine now.

It didn't happen overnight but it did happen and it is a FREE experiment to try. Go to your library to get some good books (I'm a library director) such as by John McDougall, John Robbins, Dean Ornish, Colleen Patrick-Goudreau (she had a great podcast called "Food for Thought") Won't cost you a penny!

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I also have Psoriasis and have treated it externally as well internally. I use an oil sold by a company you can find online called Garry and Sun, the oil is called 777 oil, I believe they reduced the price on this product also. I has worked wonders for me. I also have tried an aray of pharmaceuticals that all did more harm than good. I also reccomend eating cooling foods, lots of greens, oatmeals, fruits and white meats, or if you like beans and legumes. I also have found that eating spicy foods, citrus foods, and red meats have caused additional inflammation and agetation with this conidtion. I have completely cut out spicy foods, citrus foods, and red meats, and seriously increased the amounts of veggies I consume. I have always eaten oatmeal for breakfast but I have added raw almonds and cut apples to it every morning. I put the oats and almonds in at the same time so the boiling water has a chance to work on softening both. Food can be tricky however, each person has a different constitution. There a lot of gimmics out there and suggestions that work for one person and not another. But citrus and spicy foods are pretty inflamming across the board for people who have Psoriasis because they are heating foods and acidic foods. I would not reccomend drinking grapefruit juice everyday, that will cause your body to go into a hyperacidic stage and worsen your condition. But the 777 oil is a wonderful product that has worked miracles on my Psoriasis, and NO SIDE EFFECTS, other than having awesome soft Psoriasis free skin. I hope you can find a diet that works for you and maybe tryout the oil, its great. Food Matters, Water Matters, and YOU MATTER!

well i have had severe scalp psoriasis and moderate psoriasis on the rest of my body<br />
right now psoriasis is still moderate on my body but turning to mild, and it's now moderate on my scalp, after 1 month and a half of treatment, and i'm getting way better, my treatment is simple:<br />
<br />
FOOD : The J. Pagano diet:<br />
<br />
70-80% of the diet should consist of such products as:<br />
Water: 6-8 glasses of pure water daily in addition to other liquids<br />
Lecithin (granulated): 1 Tbsp - 3 times a day, 5 days a week<br />
Fruits: fresh, frozen, steamed, rarely canned<br />
<br />
Recommended fruits are: apples (baked) apricots, most berries, cherries, dates, common fig, grapes, grapefruit, lemon, lime, mango, nectarine, orange, papaya, peaches, pineapples, prunes (small), raisins, and kiwi.<br />
<br />
In small quantities: Avocados, cranberry, currants, plums and prunes (large).<br />
<br />
Fresh apples, bananas and melons are also permitted, but they should be separated from another food and consumed not too often.<br />
Vegetables: fresh, frozen, steamed, rarely - canned<br />
<br />
Recommended vegetables are: asparagus, beetroot, broccoli, Brussels sprouts, cabbage, carrots, celery, cucumber, garlic, lettuce, onions, olives, parsnip, pumpkins, spinach, sprouts, kidney beans, summer squashes, sweet potatoes, Chinese yam, watercress.<br />
<br />
In small quantities: corn, dry beans, peas, lentil, rhubarb, mushrooms.<br />
Nuts - almonds, rare - hazelnut.<br />
20-30% of the diet should consist of such products as:<br />
Cereals: oats, barley, millet, buckwheat, rye (porridges), bran, wheat - whole grains, sprouts, maize and maize flour; fig (brown and wild); whole grain seeds - pumpkin, sesame, sunflower, flax; pasta (not with white flour).<br />
Fish: not less than 4 times a week, never fried.<br />
<br />
Tuna, codfish, mackerel, plaice, haddock, halibut, perch, snapper, salmon, sardine, lemon sole, sturgeon, sword-fish, whitefish.<br />
Fowl: chicken, turkey, partridge, not fat game (without skin, white meat is more preferable), 2-3 times a week.<br />
Meat: lean mutton, isolated from fat and well done (1-2 times a week), and never fried, 110-170g per one time.<br />
Dairy products: milk (low-fat), buttermilk, dry powder milk, goat milk, soy milk, almond milk, butter, low-fat margarine, low-fat plain yogurt, low-fat and low-salt cheese, low-fat and low-salt cottage cheese and melted cheese.<br />
Eggs: soft-boiled or hard-boiled, 2-4 times a week.<br />
Oil: olive, rapeseed, sunflower, maize, cotton, soybean, almond, sesame, safflower, rare - sesame (1tea spoon 3 times a day).<br />
Tea: crust of slippery elm (in the morning), dyer's saffron (in the daytime and in the evening) Camomile tea, or tea with watermelon seeds as the substitute to safflower tea.<br />
Products, NOT Recommended by J. Pagano to People with Psoriasis and Psoriatic Arthritis<br />
Berries and fruits: wild strawberries, strawberries (citrus fruits - with psoriatic arthritis).<br />
Vegetables: all vegetable of Solanaceae family - tomatoes, tobacco, eggplants, pepper, potatoes, pepper.<br />
Grains: White bread and products prepared with the use of white flour<br />
Fish: anchovies, herring, salmon, roe, shellfish (crabs, lobsters, shrimp), sauces from shellfish, mollusks (mussels, oysters, combs, squids), fish baked or crumbs, fried, marinated or smoked.<br />
Fowl: fatty fowl (weft, goose), fowl skin, fried, smoked, baked with a large number of spices or crumbs, or not thoroughly cooked.<br />
Meat: beef, pork, veal and everything, prepared from them: hamburgers, sausages, ham etc., internal meats (heart, kidney, brains, liver etc.), and mixing mutton with starchy products.<br />
Dairy products: all dairy products with a high content of fat<br />
Yeast or products made on yeast.<br />
Coffee: not more than 3 cups per a day (in the case of strong caffeine dependence), only black decaffeinated coffee.<br />
Other: fried food, pizza, alcohol, sweet porridges, vinegar, marinades, smoked foods, hot spices, coconut, palm oil.<br />
Some foods should not be combined in the same meal:<br />
Do NOT mix whole grains, i.e. porridges, bread etc. - with citrus fruits or dried fruits.<br />
Do NOT mix citrus fruits with dairy products.<br />
Do NOT mix any fruits with white flour products: bread, porridges, pasta etc.<br />
Do NOT mix melons, raw apples, or bananas with other foods.<br />
Do NOT add milk, cream or sugar into coffee or tea.<br />
Do NOT mix too many acid-forming products (proteins, starches, sugar, fats and oil) in one meal.<br />
Red or white wine - rare by 50-100 g<br />
Try not to eat too much even of the permitted products<br />
<br />
Also an important notice, ACV, or Apple Cider Vinegar, is a known cure for psoriasis, two spoons of 15 ml each/day or 30-35 ml/day<br />
also put ACV in a spraying bottle, and spray from it on your scalp, face and neck where there's psoriasis, and you'll notice the itching is gone for at least few to several hours, after few weeks your scalp will feel way better<br />
<br />
IMPORTANT : eliminate tomatoes, potatoes, eggplants, bell peppers, all kinds of hot peppers (but not black pepper) , eliminate white flour, white bread, white rice, white pasta,<br />
eliminate all kinds of sugars, caffeine, cola, bottled juice, eliminate meat<br />
stop or avoid smoking, as tobacco is part of the nightshade family (so is tomatoes potatoes eggplants, bell peppers, and all kinds of hot peppers) which are really bad for psoriasis migraine swelling and other deceases<br />
Drink pure water not less than 2 liters/day<br />
eat an onion and lots of garlic (EACH DAY)<br />
use cinnamon in cooking<br />
and eliminate all fried foods<br />
Drink grapefruit each morning and never add sugar (to anything in your diet)<br />
eat a lot of fruits and vegetables (the recommended ones and the ones to avoid are mentioned up top)<br />
Eat oats<br />
take brewers yeast (very cheap and natural full of B-vitamins wonderful for the skin)<br />
<br />
This is a low-cost sure-to-cure diet<br />
<br />
i'd like to mention one thing in case you're laughing now and saying i'm crazy<br />
Dr. J. Pagano cured ALL yes ALL of his patients through the 35-40 years he worked on psoriasis, he cured thousands, and some had 99% psoriasis covering their body, he cured them with ONLY food!!!!!<br />
and i'm curing too<br />
<br />
IMPORTANT NOTICE: the fastest curing person Pagano has ever treated took him 1 month to be fully free<br />
the usual period for results is 3-6 months for 95% of his patients<br />
and the slowest curing person which had 30% of the body covered took two years, but that he mentioned is a rare case<br />
<br />
The concept is that we have a leak somewhere in our digestive system which is spreading poison in our body, and the poison is going out through our skin, the bigger the leak the more severe the psoriasis, it has nothing to do with our immunity, the presence of T-cells behind our skin is only to protect us from outside toxins, with a food system like the one Dr Pagano uses, the food we eat does not aggravate our leak but heals it, that's why we have to avoid some types of foods, and yes tomatoes and potatoes and other nightshade family members contain poison, but the poison can be treated by a normal person but in our case it just makes the leaking way worse, same thing to meat, sugars, alcohol... etc (mentioned above)<br />
<br />
Think about it... want to be free and live a free life? do what i did and free yourself :) many have cured don't depress.. with this food system even if psoriasis comes back you know then how to deal with it, and you'll never ever feel like this again...<br />
I really care for you and want you to be free<br />
Think about it...<br />
God Bless You

I too have severe psoriasis, and moderate, related psoriatic arthritis. I also have tried everything. Over 10 years ago (i think), when Enbrel first came out, I had health insurance to afford it, and it seemed to be working. Then I lost the health insurance and after a few months, the psoriasis came raging back. Then 2-years ago My psoriasis doubled in severity following an injection of penicillin for a strep throat. It is now the worst it has ever been. I may try to get Enbrel for free under some drug company hand-out (which is only available to those who are essentially bankrupt). Well, I have just met that requirement too. Add a narcissistic ex-wife who continues to abuse me almost daily... and yes I also think that life really sucks.<br />
<br />
<><br />
Yes. It is sometimes difficult to understand how I could be so unlucky to have to spend the second half of my life with this ****, but I have hope that somehow the genetic or biological key will be discovered and a miraculous cure will be announced. Sometimes thinking like that helps. I also have 2 grade school age kids who love their Dad. I love them too, and want to see them grow up. <br />
<br />
I guess I have accepted the spiritual position that there is some reason for me to suffer in this lifetime, and if I accept and embrace the experience, my soul may ascend to a better place following the misery and difficulty in the here and now. <br />
<br />
What is your philosophical or spiritual views on the meaning of life?

i have psoriasis too! i need very good medicine, is there anyone who can give? everyday of my life is miserable! =(