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Psoriasis Sucks

I was finally diagonised with severe psoriasis yesterday after 8 weeks of miss diagonise I had to start new meds last night that are making me feel dreadful and really run down. I have been avoiding leaving the house as much as possible because peoples reactions are horrible sometimes
jevo jevo 31-35, F 14 Responses Aug 14, 2007

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im 13 and I've had psoriasis since i was 3 i cant walk some days as its really painful on my feet do you recommend any good prescriptions

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It does suck, I've had it for nearly 7 years. I've had people describe me as "scab infested", often people are to take anything I try to hand to them due to it being on my hands. You notice more whispering, staring, and laughing around you. It hurts, is depressing and humiliating. I hope you find something that works for you.

its sucks...i have psoriasis 7 long yrs ...its all over my body even my face now have it ...i dont know what kind of medication ill take or even apply on my skin its bugging me since then ..pls help me what to do..i cant work with this ...i live with my 2 children no husband and no wrk..i cant wear shorts even a shorts sleeve..friends told me it ok they dont care but for me i cant, i feel alone in this world ...trying to find someone else with this kind of decease so we can share some experiences

One thing I am going to tell you...YOU ARE NOT ALONE! The next thing that I am going to tell you is that anyone can tell you to wear what you want...what do you care what others think...but until they walk in your shoes...they will NEVER understand the constant toll it takes on you. The more stress...the more breakouts. I have had psoriasis for the past 20 years. For years I have been told that there is nothing we can do for you...or have tried so many meds that there is nothing to take anymore without me damaging other organs in my body. I will tell you...there is hope. Try to call a hospital in your area. I live in NY so contacted NYU and found a skin and cancer clinic, which took my insurance. Thru many trials and tribulations they found a combination that temporarily worked. It was dangerous and I am not sure how long they will be able to keep you on it, or if even your body would be able to handle it. It was Methotrexate along with Cyclosporine. My body couldn't take it and I went off of it. After becoming very disappointed with it all not working anymore, I found a dermatologist in my area that was willing to take my case. I am now taking 12 Methotrexate pills a week along with some compounds that seem to help.

I wish you lots of luck.

Have you tried clobetasol steroid cream? It helps a lot, ESP with the psoriasis on your face, other good over the counter creams are albolene, cutimol, and aquaphor . Tsal neutrogina shampoo is good for you're scalp and as a body wash. Primrose oil, vitamins b12 and biotin help it heal for some.

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I had psoriasis at 25 now im 31i had it on my chest mt back my legs but its not big plaques more like chickenpox but it bothers me cause I dont go to the pool dont use shorts anymore,i dont let people get to close to me even when they say they dont care it just hard I wish all thw people from here could make a reunion where we could b us and actually share experiences

http://www.facebook.com/RemediumTheCure please try my product we send free samples. Many have tried and are all pleased with the results if you have any questions email me at remediumproduct@hotmail.com please and thank you.

It really does suck! <br />
i found my school years the worst, spent my childhood explaining i did not have horrific dandruff and that no it wasn't catching -still grossed people out though.<br />
at least now when it disgusts people they are socially obliged not to say anything.<br />
still hurts to see the look on their faces though. <br />
just gotta keep reminding myself it could be something worse.

Have you ever tried lye soap? It doesn't have detergents that irritate psoriasis and I've heard it clears up lesions too. www.grandmaspureandnatural.com sells it and I know so many people who won't use anything else.

it sucks. people are stupid and cruel. there is no cure or good treatment. we have to grin and bear it. just rise above it. remember there is always someone else who has it worse!

http://www.facebook.com/RemediumTheCure please try my new product i am positive it can help you. Many have tried and are all pleased with the results. We send free samples if you have any questions please email me at remediumproduct@hotmail.com please and thank you.

i was 5 and hospitelized the day i was diegnosed for 6 weeks. they burned them off with anthrlen past. and uv light, this treament went of ever 4 years till i was 21. during all of this i was very lonley. friends were hard to find that were not scaired to be around me. i have a limited drug plan and lots of the treaments that work for my skin are not coverd. i have learnd how to make my own creams to ease the sore dry scales. limited sun exsposure works now, as the hole in the ozone is harder on my skin then 20 years ago. you will get through this. a gluten free diet help me also. if your new meds are making you sick and tired maybe you are having a reaction. call the doctor asap. as soon as i learned to exsept myself for what i was. people soon did the same, my husband did not even knotice i had porisis for 6 months and at that time i had 78% coverage.<br />
it gets easyer. hang in there

NEED CURE TRY THIS "ALTERNATIVE MEDICINE"<br />
HE IS THE "PHYSICIAN OF THE NEW MILLENNIUM AWARD WINNER"<br />
CONTACT ONLY AFTER TYING ALL MEDICINES AN TREATMENT.PLS SEE REPLY TO OTHER PERSON FOR MORE DETAILS.<br />
<br />
<br />
BRAHMA DHARMALAYAM CHARITABLE TRUST <br />
SUPER SPIRITUALITY HEELING CENTER<br />
MAAMOODU <br />
CHANGANASSERY<br />
KOTTAYAM DISTRICT<br />
KERALA STATE <br />
INDIA<br />
PH: 9846462782<br />
(PLS SAY U NEED A PERSON WHO CAN UNDERSTAND AND SPEAK ENGLISH)<br />
<br />
I CAN SHOW U VIDEOS'S OF TRETMENT IF U LEAVE UR FACE BOOK NAME OR ID

Wow, I , too, broke out terribly after a sunburn. It was the worst nightmare. It was called erythodrmic psoriasis. Very scarlett red and your skin sheds and peels like a snake about every three days. It finally settled down after oral meds now I just have regular old plaque p. *sigh*<br />
<br />
God grant us the serinity...

http://www.facebook.com/RemediumTheCure please try my new product i am positive it can help you. Many have tired and are very pleased with the results we also send out free samples if you have any questions please email me at remediumproduct@hotmail.com please and thank you.

Im also suffering from it, Im 17 year old. My mother and grandma had this also. I got a sunburn and all the sudden it flared up. Now i have it everywhere on my body. Spots everywhere! Just know theres other people out there that have the same thing.

hai i have seen many people having this. some of them had it from 15 to10 years and they got completely cured after reaching that place.i have seen with my eyes changes coming to their body with in weeks and get cured some even in 7weeks time and it was difficult for others even to say that they had psoriasis in the past.since ur diseases is not getting cured and ur other family members also is suffering from it .i can confidently say that it is due to negativity and medicine or yoga or other can't cure u.bez i have heard it from 1000 of people who had and cured saying this to me.they tryied all sort 's of medicine with no use and at last reached BRAMADARMALAYAM,KOTTAYAM,KERALA,INDIA AND GOT CURED FAST.UNLIKE OTHERS THE PERSON WHO TREATS PEOPLE WON'T TAKE ANY REMUNERATION FOR THAT MANY PEOPLE WHO COME HERE ARE VERY POOR PEOPLE.I'LL POST THE ADDRESS BELOW U CAN TRY THIS AFTER TRYING EVERY THING.

BRAHMA DHARMALAYAM CHARITABLE TRUST
SUPER SPIRITUALITY HEELING CENTER
MAAMOODU
CHANGANASSERY
KOTTAYAM DISTRICT
KERALA STATE
INDIA
PH: 9846462782(PLS SAY U NEED A PERSON WHO CAN UNDERSTAND AND SPEAK ENGLISH)

Hi There,<br />
<br />
I hope you don't mind me posting here. I am an associate producer with MTV Networks and am currently working on a documentary for the series True Life. For this episode, we are looking for young people who are suffering from an embarrassing medical condition and who would like to share their story and journey. The topic of psoriasis has come up on a few occasions. If you'd like to learn more about the project, I can be reached through experience project or via email - embarrassed @ mtvn. com <br />
<br />
Thanks<br />
<br />
Kristen<br />
MTV Networks

Jevo I share your pain. I have had the pleasure of working with kids and as kids they can be the crulest. How do you explain to the kids what P is and that they can"t catch it from you.<br />
But I have learned it is not what they think but about how you respond to the questions. I used to make up lies that I had been burned as this would stop any further questions. Now I tell the truth that God made me this way just so I can meet them. I have a whole social group around me. Yes the way I look does affect me but I am not going to let that be what people remember me by. Relax find a good dermatologist to get it under control. and if others do not understand or are offended then they are not the people you should hang around with anyway. <br />
The drugs have gotten better and the treatments but it is a rollercoaster and one thing that worked may not in the future but there is always something else to try.<br />
<br />
My heart goes out to you just remember you can't change other peoples reactions to you just your own. Pity them for their ignorance and carry on without another thought on the matter.

Truer words have never been spoken !Through all the years and all the scales and smirks and pain. Thank God every day is a new Day! Yesterday is gone but we have today! Dont suffer in silence. WE UNDERSTAND!