I Have Ra
I was diagnosed in 1998. Also have Fibromyalgia. On methotrexate for years, also tried just about everything else. Currently doing Orencia, can't use injectibles because Medicare doesn't cover much of the cost. Every try paying a $1500/month copay on SSD? Not possible. If I go to the hospital for infusions, it gets covered. What really drives me crazy is other people. I am sick. I am tired. I have a disease. So why does everyone seem surprised that I still don't feel well? It is an added stress I don't need. Leave me be. I have had people tell me when I am done getting something out of being sick I will stop being sick. Like you choose to feel this way? And others who confuse RA with osteo and tell me take a tylenol like they do. And all the foods one should avoid, tomatoes, and potatoes and on and on. I know a lot of people are well meaning. I know how helpless one feels not being able to help someone feel better. My husband died of cancer and I could only watch. But I didn't make him feel it was his fault he was ill. I just need everyone to understand that sometimes I just feel like crap, and sometimes that lasts a while, if I am having a flare, and it isn't me being sorry for myself if I say just let me be ill today. I can't pretend to be well to make you feel better. I have a lot of family members who can only equate illness with something like a broken leg. Once the cast is off, it is over. They can't get chronic illness. I dread being asked how I am. I don't want to feel I have to hide. I have enough to deal with. I am looking for some advise. I feel guilty for being ill and that is another stressor that is just compounding everything else. Honestly, I have a good attitude. My doctor says I am one of the strongest women she knows. I am just tired of trying to be well for people who won't try to understand what my limitations are.