Defined By Rheumatiod Arthritis

I was diagnosed with rheumatiod arthritis when I was 21 years old.  Unfortunately, I recently realised that rheumatoid arthritis effected me on a much deeper level than I first thought.  It was emotionally devastating for me to hear and accept the fact that I was diagnosed with this chronically deabilitating condition.  I thought I would be the type of person that wouldn't allow my condition to define who I was and am but recently I've accepted the fact that that is exactly what I did do.  I believe that in some strange level I've been in denial about my athritis - this is a strange reality as I've got a very aggressive form of Rheumatoid arthritis so it has been a daily struggle for the past 9 years.  Rationally, I'm not sure how I could be in denial.  I've been through various combinations of rheuatoid arthritis drugs which haven't been effective.  I've been so lucky to have prescribed Enbrel - it has REALLY Changed my life in a phenominal way - like night and day...

My life has been on hold for the last 6 years and now I've finally taken charge of my life and I know that I'm more than Rheumatoid athritis and I will no longer let it control my life.  I'm currently persuing a career in photography - my absolute dream carreer.....But I'm in no means totally emotionally stable about my disease but I'm trying my very best....
africanbeatle africanbeatle
2 Responses Jul 13, 2010

I am so happy to hear that! I know exactly what it's like- I was diagnosed with RA at 21 as well..and even though I'm only 24 now (still young you'd think) I have been living in pain,hurt,denial and soooo many other feelings that it's like I had my life on pause as well. I am still a little in denial, but have been trying to keep a positive attitude despite it all! It's tough..good luck and stay strong!!

Hi there,

Thank you for sharing your story on the forum.

I am a researcher starting to work in healthcare industry since last year. Slowly through the project that we work with RA, I have learned so much about how people with RA have suffered.

Now, I work for a consultant company called DeltaMV Knowledge Solutions (www. We are working on a project called RA patient journey. To finish the project well, we need to talk to people who have been diagnosed with RA to understand what they have gone through. The result from the project will help us to write up recommendation on how to build a better support program for RA patients in Australia.

We are very much interested in your experiences if you live in Sydney, Adelaide, Brisbane, Perth or suburbs near these cities . This is a paid research. We will compensate your time for $100 in cash for an hour interview.

If you are interested please email me at 043 101 5330.

Thank you,

Trang Tran