RA Pain

I was officially diagnosed last year, during semester break (October to November 2007):
  • February 2006 - my fingers started to hurt, especially in the morning
  • Summer (March to May 2006) - gone
  • June 2006 onwards - the pain came back, I couldn't move my fingers and wrists without feeling pain. There was a time when I even cried because dressing up for school became such a painful ordeal. 
I'm on methotrexate right now.  I hate drinking that... Doesn't taste good.  Plus I still have stiffness in my fingers and wrists... It's spreading though, I'm starting to feel pain in my jaw, feet and elbows.

Sometimes it irritates me to know that I can't do some things I really want to do just because I got this disease (mine's hereditary and stress-induced)
privateeye privateeye
22-25, F
8 Responses May 13, 2007

Hi there,

Thank you for sharing your story on the forum.

I am a researcher starting to work in healthcare industry since last year. Slowly through the project that we work with RA, I have learned so much about how people with RA have suffered.

Now, I work for a consultant company called DeltaMV Knowledge Solutions (www. deltamv.com). We are working on a project called RA patient journey. To finish the project well, we need to talk to people who have been diagnosed with RA to understand what they have gone through. The result from the project will help us to write up recommendation on how to build a better support program for RA patients.

We are very much interested in your experiences. This is a paid research. We will compensate your time for $100 in cash for an hour interview.

If you are interested please email me at 043 101 5330.

Thank you,

Trang Tran

I've had RA for 35yrs. now. All my joints are affected. Had my knees replaced twice and 1 wrist. The other wrist fused itself. My fingers are bad and can hardly use them. Now my ankles are bone on bone and am thinking of ankle replacement or fused together. Have a great husband who takes care of me. He says I was dealt a bad hand but I told him he was too for having to take care of me. That's what marriage is I guess. Take it one day at a time. Lori

TRY BEING 60 & FEELING LIKE YOU WERE STILL IN YOUR 20'S OF COURSE IN MY 'MIND' ONLY. MY MIND TELLS ME I WANT TO DANCE & RIDE HORSES AGAIN, BUT MY BODY SAYS, NO WAY :(

I can relate...dealing with some serious sadness....it is such a bad disease.

Topic: Time of the year ! X-mas but if pain no fun :(<br />
Hi all,<br />
<br />
It is TIME !!! So fast .. Yes , you know what I am talking about . don't you ?<br />
<br />
Yeah , X-mas .... but what should you do to prepare yourself this big party and enjoyable time when it comes to PAIN !!!<br />
<br />
I would not want to say just go to see the doctor and get a heap of medicine from them and stock all you pain relief to enjoy this X-mas.<br />
<br />
Here are some trip !<br />
<br />
1. You know the best pain management is controlling your mind and yourself... this takes sometime to develop for mind management but you all can do too..<br />
2. You joint don't like stress .... ! Just remember that .... so you could find the way to relax it abit by soaking in the DEAD sea salt but if really pain ... you need to use intesnsive DEADSEA SALT with warm water ... ( 1 kg - 3 kg putting in your bath tube... and soak there for about 30 minutes !! ) I do not garantee it would work immidately but it will calm your stress and taking the toxin in your body out and that is the best way !<br />
<br />
3. .... :)<br />
<br />
here is some free eBook you would like to read ...<br />
"Whispering The Truth From Rheumatoid Arthritis Survivors" eBook !<br />
<br />
http://www.rheumatoid-arthritis-joint-pain-advice.com<br />
With A Grateful Mind

angelkane - the one thing my wife and I have discovered over the past several years is - if you are unhappy with / don't like your doctor - get another one! Especially since RA is not something that will 'go away' - you need to have a positive relationship especially with that doctor.<br />
I can't tell you how many doctors we have been through for my wife's Hashimoto's Hypothyroid...<br />
My easiest test is to ask for a complete record of your files (you may get charged a copying fee) - I have discovered some doctors will give you bits and not everything - that is a key item. If you have a 2nd doctor like we do...they have to be willing to give the information freely when asked for it or even be proactive about sending it over.<br />
Keep in mind YOU are the client and YOU PAY THEM. Find the doctor that everyone goes to (ie. booked way out in advance) - tell them your situation and see if they can get you in for a 2nd opinion on your treatment. Then they've seen you once and you can rebook easier (told you we've done this a lot). :-)

I stopped taking methotrexate about a month ago. I was losing hair by the handful, my stomach was always upset, having terrible night sweats, and more. I haven't noticed any increase in my pain since stopping it. I haven't told my Rheumatologist yet; I dread it. He's a nut bar.

I wrote about my experience recently - " I'm waiting for a Hip Replacement"-- my hips have deteriorated because of RA. I had my right hip replaced Dec 31st, 2007, and am on the list to have my left one done. Waiting with such constant pain has taken a toll on my life.

i do my own methotrexate & enbrel injections. there are also methotrexate tablets available to swallow. talk to your rheumatologist about starting something like enbrel, humira or remicade before it gets worse. the more aggressive the treatment, the better in my opinion. i was diagnosed with juvenile rheumatoid arthritis at age 2, i'm now 31 & i was told at age 28 that i need to have both of my knees replaced, they're nothing but jagged bone on bone. if you ever need to talk, i'm here.