Stuck With Rheumatoid Arthrtis

   I am new to this disease.  Recently diagnosed and upset about it.  I am a nurse, so I know I must learn to deal with it.  Within a matter or weeks my life turned upside down.  I am interested in learning from anyone how to deal emotionally with this as well as which meds worked best for people.  Currently on Sulfasalizine, prednisone, but hope to start injectables in a couple weeks.  need help. em

emaika emaika
36-40
4 Responses Feb 17, 2009

i have had RA for years but mainly on my hands and the pain wasnt so bad. form time to time it would flair up and then go away, but year and a half ago i got steph infection in my blood from stepping on something that cut thru my flipflops and into my foot. three days later i had a fever of 104. didnt go to the hospital until a week later. i was taken by ambulance because i couldnt move any of my limbs, nor raise my head. by that time the only thing they could do was prescribe a zpak (antiboitics for 5 days). well, now i have been infected with RA throughout my entire body, every joint, every bone, muscle and some of my organs as well. i am in pain 24/7 and the inflammation is present 24/7. i refuse to take all those toxic meds because from allthe side effects i have had.. i took methotraxate once and ended up in the emergency room with my heart racing out of control. then thy put me on azathioprine and hydroxychloroquine and that only cause horrible side effects, vomiting, dizzy spells, passing out, nausea and an eye stroke on both my eyes. Because some of the meds for RA I now have necro-scleritis in both my eyes. then for the scleritis, i was given prednisone drops for the eyes which in turn cause pre-glacoma, so they pulled me off those meds. now they have me on Doxycycline in order to save the eyes from perforating. i have been on the doxy for 8 months which worries me. On top of everything else, i ended up with a bleeding stomach from all the RA meds, pain meds, sleep aids, and muscle relaxers. More meds to fix the bleeding stomach problem and more meds to counter any other side effects. its an endless cycle with meds. No one is looking for a cure for RA, but the pharmaceutical companies are looking for more ways to get richer by making more meds. RA is not curable and nothing is going to make your bones stronger or repair them from what i have read over the past two years . So i have decided to take matters into my own hands before the doctors/pharmaceutical company poison my liver and every other organ that hasnt been drastically affected. right now, i take 5 mg of prednisone if i cannot move my limbs and 1/2 an advil. i also have changed my diet. tMost of the doctors i have had will not try and help by suggesting other alternatives and they will not help if they think you are not cooperating with thier meds plan for you. So i just pretend to go along with thier plan. i know what is right for me and its not toxic meds that makes me so sick that i am constantly nauseated and have to spend most of my days at a time in bed. choose wisely your meds and know what the side effects are. right now all meds are just a bandage from all i have read, none will cure RA or stop the progession. it may slow it down, but by how much. does anyone have any real evidence that it has slowed it down dramatically the the used of these toxic meds?

Im sorry, but I can not fathom why anyone would take all these meds. Blows my mind. What are these medications doing to your liver, heart, kidneys and other vital organs? I have lived with RA for 8 years, I only take Motrin and Tylenol. I only take those when the swelling is really bad or the migraine headaches come at me. <br />
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Please, read the side affects warnings and see the part where they lower your life expectancy down to anywhere from 5 to 10 years. I am too young to die in 5 years and so are you. Choose wisely, make informed medication choices.

Just prepare yourself mentally for a large transition in your life. As long as you let yourself accept the disease you will adjust your attitude accordingly. Rheumatoid arthritis took my ability to work and as a result I am on disability. I take diclofenac, hydroxychloroquine, methotrexate, prednisone, evoxac, Enbrel, trazadone, and ambienCR. I just started the Enbrel injections this past Tuesday so it is too early to tell. If a medication doesn't work for you keep trying other ones the rheumatologist suggests. Please don't let it discourage you.

I have been taking Plaquenil, Cymbalta, Lyrica, mobic and pain meds. They seemed to really work for the past 2 and a half years and have seemed to stop now. I am also looking into a different type of treatment. Which injectables are you considering?