Diagnosed June 08

It was over a year I was suffering with unexplainable pains, in my feet, hands, arms in fact just about everywhere.

Now I'm on my medication it's a bit better but the right amount of meds. has not been sorted yet, each time I see the doctor he puts the amount of medication up.

I no longer move in silence, I rattle with all the pills I have to take and the pain is still there, constantly reminding me I have this awful disease and will have for the rest of my life.

Mehonestly Mehonestly
41-45, F
2 Responses Jan 8, 2009

Thankyou for your comment, I will look out for the book you mentioned. I agree we all end up having to endure something horrible, I guess I'm lucky in the sence it could have been something a lot worse.

I have other autoimmune diseases - Psoriatic Arthritis (similar to RA) among them. I have a really screwed up immune system - I sum it up by saying it is defective as well as deficient - thanks to two genetic immune system problems. I've had them all my life, but was diagnosed only a couple of years ago. <br />
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I also saw your story on the faith question - and agree that having faith would be a comfort when faced with something like this; something permanent that seems to rob life of some of its meaning. But I too was raised Catholic and have abandoned all organized religion as being hypocritical and often down right immoral. My faith is very personal now and I really, really believe that we choose our trials in order to learn.<br />
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Have you read a book called: "Journey of Souls?" I can't remember who wrote it, but it is worth reading if you are searching.<br />
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Good luck with this! I use an injectable medication that helps me a lot ... it is a TNF alpha inhibitor and you've undoubtedly seen it advertised on TV. I had a horrible reaction to one, but the one that begins with "E" is working well for me.<br />
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I know that no one in life gets out of it without experiencing something fatal, so I just try to keep it in perspective.