I Have Severe Idiopathic Hypersomnia
So, I am a 27 year old married Mother of 2. I was diegnosed with hypersomnia 9 months ago. I am pleased to have a diagnosis in the sense that its nice to know I am not lazy, or depressed, just honestly tired. I used to hide naps from my husband and Mother, my children were well adjusted to Mommy nap time. I was so ashamed I felt as though I was an inadequete human being. My Mother would constantly remark at my housekeeping and my laziness. The relief I felt when i found out that I have a rare disease that I am worthy and it is not in my control was exhilerating. I felt as though I could finally understand myself. I was prescribed Modafinil/Provigil and its effects were immediate I felt like a new woman, my Mother fell ill and I cleaned and maintained her home as well as mine, imagine that! My time with my children was productive. After about 6 months it wasnt so effective I was falling asleep again, and my concentration was poor. I have extremly dry skin with sores, I now am on a loop moniter because of my consatnt tachycardia. It is quite apparent I have to discontinue use, which needless to say devastating to me. I was just starting to enjoy life, and poof its all slipping away again. It has been suggessted that my wild days as a teen are what caused this disorder, which in turn makes me loathe myself even more. It is quite common to become immune to these drugs, and there are not to many of them. My Doc says I ll probably be good for a few years and after that I will just have to suffer, and the liklihood of me getting better are slim. Permanant disability has been suggessted for later on in life. I want to more that that, I want to contribute to life. It pains me to think of spending life sleeping.
Sleepy in Windsor ON, Canada
Sleepy in Windsor ON, Canada
By:
krobson333
Age:
26-30
