A Very Frustrating Disability- Idiopathic HypersomniaHello everyone. I am new to this site and just wanted to share my story and hope to give you all some hope. I am currently 22 and suffer from Idiopathic Hypersomnia. It started when I was around 14. I was in highschool, my sophomore year I believe. I started sleeping, a lot. I would wake up, go to school, sleep through ALL of my classes, come home, take a nap, go to cheer practice, come back home, and go straight to bed. On the weekends, I was sleeping constantly. I could sleep for 14 hours a night, wake up, and take a nap 2 hours later. I went to doctor after doctor and they all blamed it on me just being a teenager. They did not want to understand the pure exhaustion I was sufffering constantly! When I was awake, it was a battle to keep my eyes open every second. You know the point when you're soo tired you can barely keep your eyes open? That's how I felt ALL the time. Doctors said I slept through classes because I was bored, and I slept at home because I was bored. I was involved in cheerleading, and practiced everyday; when someone exercises daily, they're supposed to be more awake; not me, obviously. I lived everyday like I was out of my own body.. like I was physically at school, at cheer, but not mentally or emtionally. I also suffered from depression and memory loss. I was so depressed because I had no motivation or energy for anything life. Emotions, mental, physical activity or stress just blew right over my head. I did not even have the energy to care about my depression. It's almost like I had no feelings at all; because I didn't have the energy to feel. That sounds so crazy, and you only understand if you suffer from it. I literally didn't have the energy to be happy or sad or mad; I was just empty. I couldn't remember anything I learned in school, because I was sleeping through class. I had terrible grades. I couldn't keep a job. And all my relationships started crumbling. My friends never wanted to be around me because I would just sleep. My boyfriends didn't work out because they thought I was just lazy and didn't care to understand my issue. The only relationships that stayed were the ones between me and my family, they were the only ones that saw everything happening to me and how my energy and charisma had drastically shifted. After 8 whole years of suffering and trying to get by, I finally found a doctor who cared enough to listen and help me. His name is Dr. Jeremy Cole in Edmond, OK. He diagnosed me with Idiopathic Hypersomnia and told me that it is considered a handicap as well as a disabillity. He perscribed me Adderal which I take daily. It helps, but I still suffer memory loss. I feel depression every once in a while but my ability to feel and have feelings has restored. I am now working a full time job at a law firm and also coach cheerleading at a competitive gym where my disorder hardly interferes. I know it's so tough, and I know how frustrating it is. People tend to believe that sleep disorders are nothing serious. And they will not understand what we go through unless it happens to them. People assume that we are using a sleep disorder as an excuse when in reality, it is a disability. We are handicapped. So, I know it's hard and I know you feel like you're nothing sometimes. It's probably even been hard for you to concentrate on this whole post. But I promise, there is a good doctor out there who cares and who will help. And there are people who suffer the same and can give you support.
God bless yall!