Living With Sjogrens

When I was around 20 yres old I woke up one morning and had my legs covered from feet to the thigh with a purple large splothcy mess it looked like an attack of the measles.  I was diagnosed with Purpura first as the years went on Vasculitis then allergy to the sun borderline and to worsen as the years went on/high RA factor/allergic to the cold/and the list goes on finally diagnosed with Sjogrens Syndrome.  Very dry eyes/dry mouth/glands always swollen below the ears/ etc etc.

 

I have believe it or not lived with this disease for now 25 years without treatment that is another story in its own.

 

Now I am suffering from these bites mostly on my upper leg/thigh area/top of shoulder/breast area they itch you scratch/they scab and the scabs never heal you try to help them off and either it bleeds or it is raw underneath I have been to 4 different doctors at a walk n clinic because I have no family doctor and I have been told many different things/ exyema/dry skin/scabies/allergy and I have tried cortizone creams/Fudizin H creme/baby oil/no perfume no nothing this is utterly ridiculous and I cant get into a skin doctor listen to this until         JUNE 26, 2008 OF NEXT YEAR I COULD BE PERMANENTLY SCARED BY THEN!!!! As you can see and hopefully sympathize I am thoroughly frustrated and dont know what to do next or where to turn.

 

Your advice anything would be helpful

 

Susz " Just call me bubble girl"  joke I am allergic or I react to sun/heat and cold so everyone calls me bubble girl