I am a 30 yr-old female that was diagnosed w/ SMA syndrome in May 2010, after about a yr & 1/2 of extreme abdominal pain, nausea, vomiting, and continual weight loss (which only made things worse). It took three GI doc's b/f I found one who knew what was going on. I have had 2 surgeries. I actually started a blog to tell my story and hear about others. My "SMA syndrome" blog is at... smasyndromerollercoaster.blogspot.com... I would love to hear other people's stories who are suffering from this agonizing, draining illness. It is very hard and changes your whole life! I look forward to hearing from some of you!