I Too Have Temporal Arteritis

I am a 64 year old woman and was diagnosed with temporal arteritis on June 17, 2009. The doctors first thought my head and neck pain was an unusally bad side effect to the Reclast I had five days before. After a couple of weeks of agony I was finally given a SED rate test. Then I had a positve temporal artery biopsy. I no longer have the active diease and I will be off prednisone by the end of Oct. but I still have headachs. Pain shoots through my head in the temporal area but also in many other areas. Does anyone else have that?  I am depressed. I had to retire and I loved my job. My life has totally changed in the last 14 months.
cranbrypro cranbrypro
1 Response Aug 13, 2010

I think what we need are some positive experiences to read about. Each time I search the internet or discuss the disease with people it seems to be negative. Is there anyone out there who has been diagnosed with TA and has had a positive recovery. I was diagnosed with TA last December and am taking 25mg of prednisolone at the moment. My scalp is sensitive and of course I am very fatigued most of the time. It is a dramatic change to my previously very active life. When the drug is reduced to 15mg do our energy levels increase? My rheumatologist wants me to take bisphosphonates to help with bone density. Any thoughts on this?