My Struggle With Temporal Arteritis

I was diagnosed with temporal arteritis April 2010. I began having fevers, jaw pain, body aches, and fatigue a few months
earlier. I had back surgery and thought I would feel better and
all the symptoms would go away with a little rest. (wrong)
The terrible headaches started and I thought I was going to
die. When I finally got diagnosed, my sed rate was 124.
I was started on 80 mg prednisone. Since then my dosage
has gone up and down. I am currently on 10 mg. I also have
been diagnosed with Peripheral Vascular Disease since the
TA started. This has led to angioplasty many times and
finally a stent in my artery. The prednisone has weakened my
bones and I had 2 hip replacements in 2011. I also have PMR
and osteoporosis. My rheumatologist uses the word fibromyalgia
sometimes when talking to me, but I ignore it. I have to many
Diagnosis' already. I have been on prednisone for 2 and 1/2
years and methotrexate for 1 year and the side effects are awful.
Temporal arteritis has completely ruined my life, but I look
forward to the real life in the future with no sickness or pain.
I am a 60 year old African American woman. I understand that
This disease is extremely rare for ones of my race.
Resick Resick
1 Response Nov 25, 2012

I have the same struggle you have my sister, but my faith and trust in Jehovah has helped me keep illness in check, when I have my bad days I do nothing except focus on the promise of no more pain or sickness. I am also a rare case, African American and 44 years old, I've suffered with Rheumatoid Arthritis since I was 22 years old and Now this, TA, for the past 6 months or more before I was diagnosed. The steroids are awful, but necessary. I also take Methotrexate, folic acid and do massaging to my scalp and neck which helps relieve some of the pain when I am in a TA flare and RA flare together. Make good use of your good days, but don't over do it.:)

Thanks Gracefull1 for the encouragement. It is good to hear from someone of like faith that's
going through the same struggle. Our hope will sustain us no matter what this system throw
our way. Take care. Agape