Post

TSPK In VT

Hi, I'm in my fifties and have had TSPK for a couple of years. My doctor (Doctor A)  initially prescribed steroids which helped wonderfully. Then I developed glaucoma; I don't know if the two are related, but it worries me. Anyway, he put me on Timolol and Restasis, and sent me to Doctor B, a glaucoma specialist 

Things were fine for a while, but when I developed some light sensitivity, Doctor B took me off both meds to "see what would happen." My photophobia got worse. So now I'm back on Restasis, but the light sensitivity has not gone away. It's very difficult to drive or do things outdoors, which is quite difficult, because I'm a very active person.

Soft contacts seem to help, but in a strange about face, Doctor A now says that this might not be a good idea. All the literature I've looked at says otherwise. Anyone have any comment on this? They really make me feel better, so I'm reluctant to give them up.

I'm thinking about going to Boston for another opinion. Anyone have any ideas about 1) what to do about the light sensitivity; or 2) who I should see in Boston? and 3) wearing contacts?

Thanks!

Neshkah
Neshkah Neshkah 56-60, F 1 Response Apr 13, 2012

Your Response

Cancel

Interesting comment about contacts. I have read about contacts as a treatment and don't understand that one. I have my own little experiment going on. In summary my results in the 2 1/2 years since my diagnosis is that I am prescibed Zylet at first upon flare up because it has an antibiotic in it followed by Alrex for 4 weeks starting with 4 drops per week down to one drop each week in the last week. I have not been able to wear contacts at all since my first flare up. Here is my experiment. I wear glasses for at least 60 days before trying my contacts again. Every time without fail within about 3 days I have another lesion flare up. Today my doctor confirmed that I may never be able to wear contacts again. - Don