I Have Thygeson's Superficial Punctate Keratitis
Hi, I'm in my fifties and have had TSPK for a couple of years. My doctor (Doctor A) initially prescribed steroids which helped wonderfully. Then I developed glaucoma; I don't know if the two are related, but it worries me. Anyway, he put me on Timolol and Restasis, and sent me to Doctor B, a glaucoma specialist
Things were fine for a while, but when I developed some light sensitivity, Doctor B took me off both meds to "see what would happen." My photophobia got worse. So now I'm back on Restasis, but the light sensitivity has not gone away. It's very difficult to drive or do things outdoors, which is quite difficult, because I'm a very active person.
Soft contacts seem to help, but in a strange about face, Doctor A now says that this might not be a good idea. All the literature I've looked at says otherwise. Anyone have any comment on this? They really make me feel better, so I'm reluctant to give them up.
I'm thinking about going to Boston for another opinion. Anyone have any ideas about 1) what to do about the light sensitivity; or 2) who I should see in Boston? and 3) wearing contacts?
Thanks!
Neshkah
Things were fine for a while, but when I developed some light sensitivity, Doctor B took me off both meds to "see what would happen." My photophobia got worse. So now I'm back on Restasis, but the light sensitivity has not gone away. It's very difficult to drive or do things outdoors, which is quite difficult, because I'm a very active person.
Soft contacts seem to help, but in a strange about face, Doctor A now says that this might not be a good idea. All the literature I've looked at says otherwise. Anyone have any comment on this? They really make me feel better, so I'm reluctant to give them up.
I'm thinking about going to Boston for another opinion. Anyone have any ideas about 1) what to do about the light sensitivity; or 2) who I should see in Boston? and 3) wearing contacts?
Thanks!
Neshkah
By:
Neshkah
Age:
56-60
,
Female
